Floral Arrangement for the Grieving Mom

So yesterday I went to a workshop on floral arrangement.  I mused on the way over that with today’s social media environment and daily battles in the mom wars selling books and magazines and page views, a gal with a graduate degree taking a flower arranging workshop on a Thursday morning had morphed into a political statement.  Pffft, Leaning In or leaning out, I simply enjoy arranging flowers.

I’m good at it, too.

Flowers 3 

Flowers 4

Flowers 5

I liked the idea of learning something new, as any arrangement I’ve ever done has just been me at the kitchen sink with a pair of scissors and bunches of flowers from the local grocery store.

Johnny was our instructor and he didn’t disappoint.  There were some great Pinterest worthy tips he shared to get my kitchen flower arranging “to the next level,” as folks in reality TV shows would say.

Johnny had great stories to share, too, as he does all the flowers for shows like Chicago Fire and has some celebrity clients.  My favorite story of Johnny’s was when he shared why he went into flower arranging.  His partner had died in an accident and he wanted to make a memorial.  He had never done anything like that before, and a kind gal at the flower shop felt badly for him and took him into the back workshop.

Johnny was hooked.

I felt a kinship with Johnny, because for me, too, flowers are an expression of love.  Some gals fuss over appetizers or dinner or their hair when they entertain, I fuss over floral centerpieces.

I made a nice arrangement yesterday.  I didn’t love it, but I really didn’t understand the process Johnny was teaching us until it was finished.  I’ll use his tips on my own next time and I know what I create will be better and more beautiful for it.

Flowers 7

After class was over, I found myself unexpectedly sharing with Johnny that I had done all the flowers for my daughter’s burial service.  I did the arrangement that rested on Donna’s tiny casket and some things for our home where people were helping us sit our modified shiva.

It came back so clearly as I talked to Johnny.  There I was at the local grocers (I miss you, Dominick’s) early in the morning, alone, picking the flowers that would adorn her casket.  They were for Donna, so they had to be Donna worthy.  And, being at the grocery store, I had to work with what they had.

It worked out.  The flowers were beautiful.

A couple of people had sent arrangements when Donna had died two days earlier.  I broke all of those bouquets down and handed a single flower to each of the 30 folks or so who joined us that brilliant fall day in October.  At the end of the service, after her Dad and auntie and uncle and I had lowered her down into the ground, everyone who loved Donna most dropped their flower on top of the casket — their floral goodbye.

Grief is a really odd thing and you never know when it will strike you. Yesterday, it was at a grocery store in the West Loop.

But listening to Johnny and his story gave me truth and perspective in my own story.  No one would have made a more beautiful, more worthy arrangement for Donna than me, her Mama.  It was another way to parent her, another way to say goodbye, another way to know and feel how she inspired me.

Plus, you know, I can be a control freak about things I care about.  Like flowers on my daughter’s casket.

I come from a family of practicality.  We had what we needed and were happy enough and satisfied enough with that.  My Dad never brought home flowers for my Mom.  I can hear his voice now, saying what a waste flower are, “They’re just gonna die in a few days!”

Yep.  That’s what happens with flowers.  You get them, you appreciate their beauty and lushness of life, they bring you joy, and then, too soon, they wilt and die.

A lot like Donna.

It all made perfect sense to me in that moment talking to a stranger.  I wonder, now, if that is why I take photos of the arrangements I make, that they somehow remind me of the fleeting nature of beauty and life and, sadly, sometimes love.  That I want to preserve those flowers by taking their photo, just as I work so hard to preserve Donna by still writing about her.

I don’t think I have ever loved flowers more because now, thanks to a stranger in a grocery store, I understand better what they mean to me, how precious they are, and that an expression of beauty, fleeting as it may be, is worthy.

This was a quick arrangement of wild flowers I kept at my bedside during week I spent in bed last summer with pneumonia while on vacation -- they helped!
This was a quick arrangement of wild flowers I kept at my bedside during the week I spent in bed last summer with pneumonia while on vacation — they helped!

Thanks to Johnny at Mariano’s in the West Loop for his time yesterday.  I will see you, Sir, at the Chicago Flower and Garden Show.  

Donna Day 2014: A Tale of Two Cities

A couple of weeks ago I brought my son and his friend to see the Lego movie on opening weekend.  He was stoked and I was reflective.

Imagine that, me being reflective . . .

See, I couldn’t stop thinking about a virtual friend I have, a fellow Cancer Mom, who was generous enough to share her child’s story with us as part of The September Series.  My son was happy as a clam, excited to be with a friend on an outing, but also to sit in a crowded theater and enjoy a movie he had been anticipating for months.  Months is a long time to wait when you are five years old.

My friend’s child was not so lucky.  He would spend the day, the weekend, in a hospital bed in a pediatric cancer unit.  No friends, no movie, uncomfortable, and unable to eat.

While I was at the movies, my friend was with her son at the hospital.  Their room overlooked the medical heliport.  She mentioned it was very busy.
While I was at the movies, my friend was with her son at the hospital. Their room overlooked the medical heliport. She mentioned it was very busy.  Photo courtesy of Chemo and Donuts.

When I wrote Donna’s Cancer Story in 2011 there was a description that has really stuck with me:

Cancerville is full of subdivisions and part of the deal when you are relocated there is you have to live in the right one, depending on what’s happening with your treatment.  Among them are Relapse Valley, Chemotown, Transplant Meadows, Infection Ridge, Remission Viejo, and Secondary Cancer Estates.  Off in the distance, on opposite sides of the tracks, are Grieving Heights and Survivors Glen.  Survivors Glen has the best zip code, but as in every desired neighborhood, there is not room enough for everybody.  Within Survivors Glen is a small pocket called Scarred Acres, full of children finished with their treatment, but marked in a hundred different ways by their cancer.  Some will live in Scarred Acres the rest of their lives.

I have heard from many folks who were struck by that description, as the truth of it resonated with them.  All of them were fellow neighbors in Cancerville.  If you’ve never lived there, it’s hard to comprehend.  I know I certainly didn’t before I moved in.

In 2007, when Donna was in the midst of heavy chemotherapy, we spent a lot of time in the hospital.  A lot of time.  I added it up once and it well exceeded 150 days.  Some of those days I thought I couldn’t stand another moment, I didn’t have the strength, I was beaten and worn, and, at times, bitter and resentful.  Donna’s hospital, Children’s Memorial (now Lurie Children’s Hospital of Chicago), was smack dab in the Lincoln Park neighborhood.  Groud zero for drunk college kids, 20 somethings on the make, and wealthy families whose children did not have cancer.

It messes with your head when you leave your daughter’s bedside, fear in your thoughts and terror in your heart, just to get a sandwich, and you are surrounded by people  who are simply late for a meeting or joining friends for coffee or on a first date.  It shakes you and unnerves you and you feel exposed and vulnerable and alone, terribly alone.

The city of Cancerville exists, parallel to Healthy Town.  Don’t get me wrong, Healthy Town has its own problems.  No place is perfect, no life without its problems.  Healthy Town is no exception.

Now, while still a resident of Cancerville (a lifelong resident), day-to-day, I can enjoy some of the privileges of Healthy Town and I work hard to not take that for granted.  I can bring my son to the movies, fear only rules some of my days, and the thing that keeps me up at night is missing my daughter, not monitoring her breathing, or administering an around the clock antibiotic, or checking the tubing on her IV that carries her nutrition, or cleaning up a copious amount of vomit.

The reason Donna Day exists, the reason I write about Donna and feature stories of childhood cancer is because that town of Cancerville is full of children and families whose lives are unimaginable to the average person in Healthy Town.  It’s population grows by 46 every single school day.  Yes, it’s getting crowded up here in Cancerville, cause once you move here, you never leave.

Funding for pediatric cancer research is abyssmal.  Roughly 4% of the cancer budget of the National Institutes of Health is devoted to childhood cancers.  A new medication, specific to childhood cancer, has not hit the market in over twenty years.  Our crazy dysfunctional government actually passed legislation called the Creating Hope Act in 2011 to incentivize pharmaceutical companies to focus much needed resources specific to childhood cancer.  Nothing has come of it because there is no money to be made.  Not enough children get cancer for it to turn a profit for pharma to invest in, despite it being the number one disease killer of all children in America.

It makes me sick.

Photo courtesy of Anne Geissinger.
Photo courtesy of Anne Geissinger.

Donna Day is one way you can help.  Our charity, Donna’s Good Things, has affiliated ourselves with the good people at St. Baldrick’s — the number one private funder of childhood cancer research.  Some of Donna’s own doctors have received hefty grants from them.  Since this campaign started (originated by a reader just like you), Donna’s Good Things has raised OVER TWO HUNDRED THOUSAND DOLLARS for St. Baldrick’s (hot diggity damn!) thanks in large part to our amazing shavees and to the compassionate bloggers that have championed Donna’s Cancer Story and encouraged their readers to donate.

Blogging works, yo, but it only works if there are readers and sharers and donors, like you.  You.  This vast Internet is full of some of the cruelest most awful things you can imagine.  But it is also full of love and hope and charity and generosity.  I see it every day.  I am humbled by it more than you can even imagine.  I believe in it, which is why I write these words and advocate for research for our children with cancer.

No matter where you live, Cancerville or Healthy Town, you can help. Here is how:

1.  DONATE to the Donna’s Good Things shave event for St. Baldrick’s by clicking on the green “donate” button.

2.  SHAVE your head at our event on March 29 in Chicago by clicking on the blue “join us” button.

3.  BUY a St. Baldrick’s Super Hero t-shirt (just $14.99) for the kid or woman in your life who is your hero by clicking here.  All proceeds between now and February 28 will be credited to the Donna’s Good Things campaign.

4.  CREATE hope by getting involved with Donna’s Good Things or hosting your own event for St. Baldrick’s under the Donna’s Good Things Campaign.

Thank you.  As Donna’s Mama, Donna Day is a holiday for me — a virtual gathering of friends and supporters like you and so many amazing bloggers sharing their platforms to help #conquerkidscancer.  There is no turkey or candy or presents, but there is the gift of HOPE for children and families living with cancer, survivors who are marked by their treatment, and those who have yet to be diagnosed.

We need you and are so grateful for you to see us and not look away.

What I Learned About Parenting from Last Night’s Dinner Fail

I pretty much put dinner on the table Monday through Friday.  On the weekends, I don’t worry about it too much.  There’s leftovers and Mary Tyler Dad is around to help “man” the kitchen.  Last night was one of those infrequent nights that we cooked dinner together.  Aside from me not having showered all weekend, or done my hair, it was a picture perfect moment of a happy couple slicing and dicing away.

We were making a chili recipe I had found a few weeks before.  It was a hit, so there it was back in rotation on the menu.  My husband is much more of a natural cook and something that might take me 20 or 30 minutes, he tackles in 5 or 10.  I set him up chopping and dicing (also known as the ‘laundry’ of kitchen duties) while I browned the meat and measured the spices.  We were good to go and making great time.

After the veggies had been added I stirred the chili and said out loud, “Huh.  Last time I made this it was red.  Why isn’t it red?” But there were corn muffins to get in the oven and stories to tell and two kids to tend to, so I didn’t think too much about it.

About 15 minutes later I pulled the corn muffins out and put them on the counter.  Dinner was ready!

That was when I saw the box of tomatoes and the jar of salsa.  I had a V-8 moment.  Dude.  I had completely forgotten to put the “red” ingredients into the chili, which would, of course, account for the odd brown color it was rocking.  Oh, yeah. um, maybe dinner would take a few minutes more.

Crisis averted by simply adding those tomatoes and salsa I had so absentmindedly left out.  And those muffins that so stubbornly clung to the tin?  Pfffft, muffin tops taste better anyway.  We were delayed about 15 minutes, but that’s the story of my life every day.  Why should dinner be any different than any time I try and leave the house?

As we sat down to eat and I admired and salivated over our food, I thought about what a great metaphor for parenting our dinner fail was.  And, yes, this is how the mind of a mom blogger works.  At all times.  It is exhausting, just ask my husband.

Last night’s dinner presented fails in two different kinds of ways.  With the chili, I simply got distracted and didn’t follow the recipe as written.  That was a clear and easy to identify mistake.  My mistake, which I own.  With the muffins, I had done exactly as the instructions on the box suggested.  Didn’t matter, as those suckers were stuck in that pan and not going anywhere.  But what’s this — you do as you’re told and something still gets mucked up?

Chili 2

This is where the parenting metaphor comes in, so stick with me.  And stop with the eye rolling already!

When we parent, there will be mistakes we make that will fall squarely on our shoulders.  The phone attended to more than the child, consciously opting not to wear boots on the first sunny, warm day in months, which results in massive puddles and soaking wet shoes and socks for your son on a long day out.  Those dots are easy to connect and you try to not make those mistakes regularly.

But the second kind of mistake, the stuck muffin mistake, well, those kind of mistakes are seemingly beyond your control.  You pay attention, you do everything you’re told to do to avoid the mistake, you expect the best, and then, fail.  Those kind of parenting mistakes suck the most.  There are fewer dots to connect, fewer clues as to how to make things right.  Sometimes muffins stick and sometimes we get stuck, too.

When we parent, we make mistakes.  They are a given, a fact of life, inevitable.  But if cancer has taught me anything, it’s that many things in life that you think are a problem, a fail, well, bluntly put, they’re not.  So many of our mistakes in parenting have a fix.  Time helps.  Talking helps.  Walking away helps sometimes, too.

Last night’s dinner had a happy ending.  The chili was delicious despite my original omissions.  Corn muffins taste good, top or bottom.  It worked out fine in the end.

Parenting doesn’t always.  Bad things can happen despite your best efforts, but most of the time, much of the time, things work out.  Our kids grow up to make mistakes of their own.  And that is comforting to me, just like chili on a cold winter’s night.

Chili 1