The Opposite of Schadenfreude

I first met Nikki of Moms Who Drink and Swear fame at a bar amongst a gathering of other ChicagoNow bloggers in the Spring of 2011.  I was with the gal that convinced me to move my blog there and she happened to work for another branch of the Tribune.  She had met Nikki a week or two prior and was singing her praises.

Much of our discussion about Nikki was about her numbers.  Her ridiculously insane high number of Facebook followers.  At the time, it was around 125K. I had approximately 50 readers and no Facebook presence at all.  I hadn’t even met Nikki and was already self conscious.  I was like in spring training for park district T-Ball compared to Nikki’s major leaguer who had just won an MVP trophy.

Somehow, she seemed to like me.  Impossibly.  I am shy when I meet new folks and in the presence of someone like Nikki, who has wattage to spare, I tend to clam up, retreating from their shine.  Not with Nikki.  We chatted kids and she taught me silly things about sex that I forgot as soon as I left the bar (Catholic repression, yo).  I liked her, too.

You can't see it, but the gal who took this photo could roll her own cigarettes like a ninja, but did not know how to press the button to take the photo.  We were dying, but working hard to be polite.  Pfffft.
You can’t see it, but the gal who took this photo could roll her own cigarettes like a ninja, but did not know how to press the button to take the photo. We were dying, but working hard to be polite. Pfffft.

A month or so later I saw that she had shared something I had written with all of those multitude of fans.  I had my first spike in numbers and I liked it. What a thrill.  I didn’t even know how to thank her, as we were not yet friends. I just sort of basked in the glow of it all.

A month or so after that she shared something of mine again.  She thought I was funny, what I had written was funny.  Squeeeee!  I made Moms Who Drink and Swear laugh!  That time we got friendly.  I bit the bullet and submitted a friend request to her.  She accepted.  Squeeeee redux!

Nikki taught me about blogging, about Facebooking, about sharing, and about what she called, “doing the work.”  “You’ve got to do the work,” she would say.  That meant writing, posting regularly, cultivating a community on Facebook — doing the work.  We talked about our writing a lot, our goals, our ambitions.  Yep, a couple of moms with keyboards and ambitions.

She has been a kind and generous friend, supportive of my pediatric cancer advocacy to the point that enables that advocacy to grow, as she gives it an audience.  Turns out, Moms Who Drink and Swear also care.  A lot.  I know Nikki to be a ferociously loving daughter, wife, and mom.  To see her parent is to feel inspired and capable, a great combination for such a formidable task.  Plus, the gal is just funny as hell.

I respect Nikki immensely.  She is funnier than I am, more irreverant, doesn’t give a damn about some of the petty stuff I hold close.  I am still learning from her.  I once told her she was a character, which made me love her even more.  That rubbed her the wrong way, as she had heard that her whole life and with a negative connotation.  To me, a character is someone who is precisely, exactly who they are no matter where they are.  A character holds themselves the same way whether they are speaking with the President of the United States, Mother Theresa, or George Clooney.  My Dad is a character.  To call someone a character, to me, is the highest of praise. There are not enough characters these days.  Too many of us are morphers, chameleons.

Flash forward.

It's here!
It’s here!

Today I walked into a book store and asked to see Nikki’s book, published today.  Moms Who Drink and Swear:  True Tales of Loving My Kids While Losing My Mind.  Nikki has worked really, really hard on this book.  No selling out, no cashing in.  She “did the work,” just as she encouraged me to do two years ago.  It’s rare that we see our work so tangibly presented.  Words on paper, bound together, our name and a title.  Nikki did the work.  And I am so damn proud of her.  And honored to call her friend.

Acorns in Cancerville

Yesterday marked six years since we moved to Cancerville, when our Donna was diagnosed with a rare and aggressive brain tumor, papillary meningioma. I write the name of the bastard because it is so neglected in the cancer world that there is no treatment for it.  I like to call it out by name.

Yesterday was quite a different day than March 23, 2007.  On that day, I awoke in a huge hospital room at Children’s Memorial in Chicago.  There were six beds total in the room and it was on a respiratory floor.  We were there because we had been hastily admitted the night before and it was the only bed available.  Donna woke about 5 AM and vomited.  I cleaned her up and sometime later was changing her diaper.  I said to her what we always said during that routine, “Change your diaper, change your life!” It was one of our bits.  She repeated it back to me, as she always did, but her words were slurred.  Something was wrong.  Terribly, terribly wrong.

Within moments, Donna crashed.  Unresponsive.  Just a little sack of potatoes in my terrorized arms.  I called out for help, I rang the nurses.  I called out for help again.  The other parents in the room, all bleary and scared, looked at me without words.  Their fearful eyes spoke volumes, though.

Within a couple of minutes a PICU doc was in the room.  Dr. Kane was his name.  He told me to follow them and I did.  We ran through the halls.  Or did we?  I honestly can’t remember.  I also can’t remember when Mary Tyler Dad got there.  I called him at home after Donna vomited and we lived about 20 minutes away.  I do, though, firmly remember him at my side when we learned from Dr. Kane just a few minutes later that Donna was sick.  Very sick.  “There is a mass in your daughter’s head.”

That is the moment we moved to Cancerville.

Morton 4

To mark six years in this place is both remarkable and perfectly ordinary. Cancerville is where we live, where we will continue to live.  Like our zip code, it just is what it is.  We have changed neighborhoods in Cancerville in the six years we have lived here.  That first day six years ago we moved to a sub-division called Diagnosis Estates.  Today we live in Grieving Heights, the least desirable sub-division.

But yesterday was a very different day than March 23, 2007.  The sun was shining.  The air was cold, but the warmth of the sun was so welcome after this long winter.  Mary Tyler Son had dance class.  His class meets in the Donna Quirke Hornik Studio, renamed after her death.  He doesn’t have the same relationship to dance that his sister did.  It’s been a noble experiment. No doubt he will opt for soccer or karate next year.  I will miss the weekly walks to dance class, a sweet connection to Donna.

After class we headed to Honda of Lisle to accept one of those awesome cartoon sized big checks.  $500 for Donna’s Good Things, the charity we started during Donna’s vigil.  We had won their February charity contest. Lots and lots and lots of folks voted for our charity to win the prize (Thank you!). $500 will fund a scholarship at Performing Arts Limited for a year, including recital costume.  One more child dancing.  That was a real pleasure.

Well it turns out the dealership is right down the road from the Morton Arboretum.  After lunch, we drove over, with the thought that it would be good to get outside and let the boy get his ya yas out.  We were greeted with the acorns that flank the entry into the grounds.  Then more acorns.  And more. Mary Tyler Son ran and jumped and climbed and crawled.  The sun felt warmer, the air felt clean.  The cold seemed to melt away along with the piles of snow everywhere.  Drip, drip, drip.

Morton 3

This was a much better day than six years ago, despite Donna’s absence.

There is something to be said for acceptance and integration.  There is something to be said for “going to the joy,” which is what a dear and wise friend who herself knows great loss encouraged us to do.  While the sadness of losing Donna will never leave us, it has not prevented us from living.  Feeling the sun on an early Spring day, appreciating a boy growing bigger than his sister ever was, seeing the simple beauty of an acorn.

Acorns have great meaning for me.  This wasn’t always so, but on Donna’s 5th birthday, the first birthday after her death, two of her little playmates each gifted me with an envelope of acorns.  These two little girls, both four at the time, found the acorns and told their moms to give them to me.  One of these little beauties was emphatic in telling her mom that the acorns were for me to remember Donna.  Her mom tried to explain that I would remember Donna always even without acorns, but the girl was clear — I needed those acorns to remember Donna.  Case closed.

On that fifth birthday we got friends together at Candlelite Chicago, a local place we celebrated often with Donna.  I was miserable.  Why on earth did we think having a pizza party on Donna’s birthday was a good idea?  I put a smile on and got through it.  The two envelopes were given to me at the party, but I didn’t open them until just before bed.  Two envelopes with acorns in them.  One from Evanston, one from Michigan.  What were the chances of that?

Oh a whim, I Googled “acorn symbolism.”  Within moments, I was a ball of messy tears.  It felt that Donna was speaking to us personally, though her friends.  The most commonly accepted meanings of acorns include:

  • potential
  • strength
  • power
  • protection
  • luck
  • immortality
  • life

I know that it is so easy to see what you want to see, feel what you want to feel, but in that moment, I believe with complete confidence that Donna was communicating to us.  She wanted us to be strong, to live life, to feel blessed and protected.  And I did.  And I do.

Morton 2

When I see acorns now, I feel Donna. They remind me that she was here, that she, like an acorn, was small, but mighty.  “From little acorns do mighty oaks grow.”  This quote is common and has been around for centuries.  No one has correctly attributed it.  Donna was our little acorn.  Donna’s Good Things is the oak that we are nurturing that it might grow big and strong and mighty, taking the potential of one small acorn and realizing it in a tree that brings continued life.  Oak trees grow, even in Cancerville.

So, yes, yesterday was a meaningful day for our family.  Six years in Cancerville.  But there was Donna, in all the acorns.  She was in other places, too.

She was in her brother’s smile and joy as he climbed the rope bridges.

Morton 7

She was in the sun that shone so brightly.

Morton 1

She was in our love and happiness.

Morton 6

 

Acorns and Donna are everywhere . . .

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Facebook is the New Valium

I remember it well.  In the kitchen cabinet above the radio lived our families’ orange prescription medicine bottles.  Valium being one of them.  My Mom’s Valium.  Even as a young girl, I knew that it was a difficult day if my Mom took a Valium.  It wasn’t a regular thing, thank goodness, but I just knew:  Mom’s wit’s end = little pill.

I grew up in the 70s.  My formative years were full of playing outside, Brady Bunch reruns, pet rocks, disco, and this awareness that some moms took pills to get through their days.  It was never something I discussed with my Mom.  Probably because when she died I had not yet become a mother myself.  One of my greatest regrets in life is that I never communicated with my Mom, as a mom, about being a mom.  I so wish we had known each other as moms.

This was also the era of Jacqueline Susann’s Valley of the Dolls.  I definitely remember that movie being exotic and taboo in 1970s middle America.  The moms joked about it.  I could hear their laughter waft up the stairs during their monthly “club” nights, which were hosted in our home twice a year.  Those were the best nights.  There was something so awesome about hearing my Mom and all the neighbor ladies laugh uproariously til the wee hours of the morning.  Like, really, really loudly.  LOUD.  Just what was so funny?, I used to wonder.  And the next day would bring leftover nuts and cheese balls and treats and French Silk pie from Bakers’ Square when it was still called Poppin’ Fresh Pies.

Poppin’ Fresh Pies was hip hop before hip hop even existed, yo.

Last Thanksgiving I made what I thought was an astute observation at the holiday dinner table when I said, “Facebook is our generation’s Valium.” Silence.  Dead silence.  I still think it’s true.  A quick wiki search informs us that Valium is the brand name of Diazepam, a benzodiazepine.  It was launched in 1963 and was wildly successful.  “Benzos” as they came to be called, replaced the much more sedating, but still wildly prescribed group known as barbiturates.

NOTE:  As awesome as this gal is, she is not my Mom.  And a chicken dinner will go out to anyone who can tell me what is happening on this gal’s head!

Like it or not, a lot of moms in the 1970s and 1980s got through their days with a little help from their friend Valium.  As a mom myself now, I totally get it.  I mean, I am the mom of one (less Donna) and there are days that the little bugger frustrates me no end.  Imagining my boy and three other little ones running around with little or no help from Dad?  BAH!  I would totally lose it.

Enter Facebook.  Cue the angels singing.  I know not everyone is on Facebook.  And I know everyone doesn’t use it to the extent I use it, but in the social media circles I frequent, Facebook is totally and completely the new Valium.  Without the pesky chemicals or necessary prescription.

Think about it.  Why is Facebook so pervasive in our lives?  Why do thousands upon thousands of Facebook pages exist devoted to motherhood and parenting?  Because we need it and it serves a real purpose.  We need to be connected.  Here are just a few that demonstrate the point that mothering can make you feel a wee bit off balance:

We need an outlet to vent about the little ones who try our last nerves.  And while these pages can be vastly different from one another, we need a place to go when our kids stomp and tantrum and melt down and get under our skins in an unhealthy kind of way.  We need a place to fret about the poop that landed in our bangs, but we didn’t notice for three hours.  We need a place to laugh at ourselves when we drive our kids to school in pajamas with a towel on our heads.  We need a place to document the epic meltdown that just occurred in the Target that left us reeling and this close to losing our shit after watching our kids lose theirs.  Or even just a place to connect when we’re doing our best and it doesn’t feel quite good enough.  Moral support from others deep in the trenches.

Moms need to be connected.  Facebook is our drug of choice, the vehicle that brings us all together.  The ultimate koffee klatch, if you will.  But just like Valium, it has drawbacks.  We run the risk of being more communicative with the screen than our kids.  Dependence is a very real possibility.  I know if I take a few hours away, folks are looking for me, worried about me.  In turn, I start to get a little fidgety.  What’s happening, I wonder?  Oh!  I need to share this!, starts to feel really important.

Yeah, there are definite drawbacks.  And truth be told, I am way more dependent on Facebook than I ever believe my Mom was on Valium.  Her once a month life line on an epic-ly bad day is my daily necessity.  Like keyboard caffeine.

“Hi, my name is Mary Tyler Mom and I am addicted to Facebook.”  “HI, MARY TYLER MOM,” is what 11,947 say in unison every morning as I power up the iPad and check Facebook before the weather, news, or anything else of import.  Yeah, Facebook is definitely the new Valium.  At least it’s my Valium.

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