Selling Pantyhose and Other Indignities of Life

My first job after college was selling pantyhose for Carson Pirie Scott at the River Oaks Mall in Calumet City, Illinois.  I was crushed.  Selling pantyhose was not what I had signed up for.  I had a degree, yo!  I had done everything I was supposed to do, yo!  I was better than this, yo!

Ha!  I look back now and want to tell my 21 year old self to cry me a river. Boo hoo, sweetie, life is rough.

Sometimes I think about those years and how lost I felt.  Entitled, too, to be sure.  Lost and entitled is the plight of most 20-somethings, isn’t it?  I would stand behind the counter and ring up the sales and wonder what on earth I was doing there.  On a good day, I got to switch to the Coach counter and sell handbags to the fancy ladies.  Then, inevitably, I would trudge back to legwear and listen to the excuses the gals would make while handing me their worn hose with runs in them, “This had a run coming out of the package!”  I never believed them, but what did I care?  It wasn’t my money I had to return.

Pantyhose suck.

After a year of that nonsense, I followed my Dad’s advice (my Dad whose roof I was living under), and found a secretarial job in “the City,” as surburbanites like to call Chicago.  What an ego blow that was.  Yet again, another attack of, “I have a degree!  I am smart!”  As if secretaries are not smart or degreed.  My 22 year old self had a lot to learn, too.

Turns out, my Dad was the smart one.  “Getting my foot in the door,” as he used to call it, was the best thing I could have ever done for myself.  I had some $ for the first time.  I got a sense of how little I knew about the world.  I got a thirst for the City and living an adult life independent from my parents and family.

My eyes were opened and I liked what I saw.

There were clubs and crushes and socializing and a first apartment.  I spent too much money on a DKNY top that I called my “magic sweater,” cause when I wore it out to the clubs, I magically never had to pay for a single drink.  I took a four week vacation and tramped through Europe with my college roommate, flopping in hostels and oogling Italian men.  I was still a squirrel then, so I didn’t take advantage of the fifty cent beer in Prague, and was shocked (shocked, I tell you) by the proliferation of semen stains on the thin hostel mats.  Come to think of it, I didn’t take advantage of the Italian men, either. Pffft.

Life was good.  Life was great.

After a while, though, I wanted something more.  I wanted meaning in my life.  Meaning was very important to my 24 year old self.  I applied to three graduate schools of social work and was rejected by all of them.  Sigh.  But, dammit, I wanted meaning and I would have meaning!  I spent some time volunteering — adult literacy tutoring and rape crisis counseling.  I applied again.  I was accepted.  Hooray!

The cheap thrills and expensive shoes were no longer so important to me.  I was a grad student, serious and committed.  My admission essay was about the parallels between me and Jane Addams.  Egads, I was insufferable.  I cut my hair super short and started wearing glasses instead of contacts.  I fell in love, really fell in love.

Life was good.  Life was great.

I left my secretarial position to focus on school completely.  Twenty years later, I am still paying the student loans for that year of intense focus. Graduation came bearing down and I got nervous.  Transitions always make me nervous.  Would I be selling pantyhose again?  I accepted the first job that was offered to me, a month before graduation, as a therapist in an outpatient group program for mentally ill older adults.  Glamourous.

A close friend from graduate school accepted the same position and we wonked out together as newly minted therapists.  She was amazing, this gal.  Really smart, really driven.  We would “process” together every day after group therapy.  She made me a better clinician.  But still, I was unhappy.  I wanted out.  After two years in graduate school, I had accepted a job where not only was I responsible for the mental health of a bunch of older adults, but I also helped them in the toilet and drove them home in the 15 passenger van we used every afternoon.

Again, I was crushed, lost, and entitled.  (Are you sensing a theme yet?)  What I was doing did not resemble the therapy position I had imagined for myself.  It was my dear friend who set me straight.  She educated me about the significance of wiping your elder’s bottom, them sitting across from them in a group therapy session — if you could gain that person’s trust, BAM, you could gain any person’s trust.  She was right.  But I was still pretty miserable.

Sometimes, folks, life is not what we want it to be.  We think life betrays us, that we don’t deserve the circumstances we find ourselves in.  That we are due better, more, different.

I am so grateful for my time selling pantyhose and wiping the bums of mentally ill older adults.  I deserve nothing.  I only deserve what I make, what I create, what I strive for.  Those years of feeling resentful and betrayed by life were a better education, by far, than my college or graduate degrees.  Those years taught me about humility and patience and strength and weakness and compassion and empathy that all existed within me, but I hadn’t quite yet tapped into.

I hope I am smarter now, and less entitled.  More found than lost.

Regardless, pantyhose still suck.

 

Angels and Warriors and Cancer, Oh My

Having a child die before you is not easy.  Everyone can agree on that.  It is universal knowledge that parents are supposed to die first — sometimes too soon, but they still die first.  Then the kids.  Sadly, it doesn’t always work out that way.  Sometimes children die before their parents.  It sucks, but it happens.  Seven children in America will die of their cancer diagnosis every school day.

How we as parents of a dead child make sense of that will determine how we move forward.  My husband and I have opted for acceptance.  We accept that our daughter was diagnosed with cancer.  We accept that she was one of the 50% of children diagnosed with a brain tumor that will die.  We accept that there was so little information about her type of cancer, papillary meningioma, that there was no treatment protocol to guide Donna’s doctors.  They did the best they could, but as a family member who is a cancer researcher told us, everything that was done for Donna was nothing more than “a shot in the dark.”

So we do our best to accept something that defies the natural order of things.  We don’t like any of it, but we accept it.

We also know that other folks accept different things.  In trying to make sense out of childhood cancer, many turn to metaphors for answers.  Our children who have died become “angels,” gentle and revered creatures lucky enough to fly above us and be with God.  Or “warriors” waging war against the enemy inside their body.

This brings me no comfort.

angel

The words we use to talk about cancer, in children and adults, influence how we think about cancer and those unlucky enough to be touched by it.  Survivors are called “victorious” and “winners.”  Those who have not survived their cancer are called “angels” and “in a better place.”  I read a description last week that almost made me throw my iPad across the room.  A respected cancer advocate wrote the words “those who have fought and surrendered to cancer” to describe people who have died as a result of the disease.

Ugh.  ARRRRGGGGHHHH.

Words matter, people.  My four year old daughter is not an angel right now.  She is a child who died of an aggressive brain tumor.  I myself, early in treatment, used to refer to Donna as a warrior.  Then one day I looked at her — my beautiful and vulnerable daughter.  She was not a warrior.  She was a girl, little more than a baby, under two years old.  She held no weapons, she had no strategy, she answered to no general.  Donna was no warrior.  Just a girl.

I even try to stay away from the analogy of “fighting” cancer, which is so very common.  In a fight, we can all recognize that there are generally winners and losers.  If those who are “victorious” over their diagnosis are the “winners,” then it stands to reason that those unlucky enough to die after being diagnosed with a more aggressive strain of the disease or some unfortunate circumstance like infection, are “losers,” or have “fought and surrendered to cancer.”

Hell, no.

My girl is not a loser, and she sure as hell never surrendered.  Good freaking Lord, just days before she died she was still attending school.  Does that sound like surrendering to you?  Not to me.  Not a chance.

I don’t want to be all self-righteous here, or play the cancer card — the card that implies that my opinion holds more water than yours because of its hard earned credentials.  I do, though, want to inform and question and educate.

When we use words like angel and warrior to describe a child with cancer, why do we do that?  How are those the go-to metaphors for children diagnosed with the number one disease killer of children?  Does it make it easier to accept the brutal consequences of a disease that is underfunded and ignored by so many?

warrior

Does it make it prettier to think of thousands of angels floating above us, protecting us in a way that we were unable to protect them?  Does it make us believe that these kids are stronger than they actually are if we wrap them in the imagery of warriors with protective gear and weapons to defend themselves?

Human nature demands that we try and make sense out of things we don’t understand.  I think that is a large part of these metaphors that romanticize these most vulnerable of children.  Let’s not do that anymore, okay?  Let’s not lay our own needs on these kids.  They and their families are already carrying more than their fair share of burdens.

This is the reality:

IMG_6608

Angels and warriors only confuse the issue.

Groundhog Parenting

I have been parenting for eight years now, but only have one four year old. In essence, my husband and I have parented two kids, back to back, at four year intervals.  ‘Groundhog parenting’ is how I have come to think of it. Thanks, Cancer!  The beast that keeps on giving.  Sigh.

It’s hard to know how to describe it.  On a guttural level, it’s just really odd. There is a sense that after all these years, we should be further along, you know?  Like we’ve been given a do over or something.  Except, obviously, life is never a “do over” and losing a child to cancer and parenting another child you have been blessed with is about the furthest thing from a “do over” that I can imagine.

Bill Murray in "Groundhog Day," 1993 from Columbia Pictures
Bill Murray in “Groundhog Day,” 1993 from Columbia Pictures

In just two months time, Mary Tyler Son will have reached the age Donna was when she died.  I can’t stop thinking of that. Will that event be what breaks us out of Groundhog Parenting?  Will Mary Tyler Son turning four years and three months be the tuning point that will shatter the time loop of our life?

There is no question that the boy is his own person.  I used to worry and worry and worry over that when he was a baby.  His sister was such an extraordinary child and so widely recognized for her qualities and wisdom and strength — would Mary Tyler Son grow up in the shadow of a sister he didn’t remember?  At Donna’s memorial service, my Dad, in his eulogy, made a point of saying that the person he felt the worst for was Mary Tyler Son, who would grow up without his sister.

Gratefully, I don’t think we have saddled him with that burden.  Nor have our close friends and family.  Mary Tyler Son has a lot of what Donna had — he is bright as can be, has keen verbal skills, and is as silly as his sister was.  But he is different from Donna in many ways, too.  He is more physical.  And less timid.  He doesn’t like to make art, but he loves to work on Legos.  And he prefers encyclopedia type books over stories.  In dance class he just kind of flops around and looks at himself lovingly in the mirror where his sister was laser focused, working hard to follow teacher.

It’s not lost on us, either, that we are hoping and working hard to add to our family through adoption at this point.  Back into the Groundhog loop we go (we hope).  More diapers, more gear, more bottles . . .

So what’s my point?  I have no freaking idea.  Honestly.  It’s just something I think about.  A lot.  Maybe I should be smarter, wiser, better prepared than I feel.  When my boy acts the fool and does something so shocking, showing his age and normal development, I think — WHAT?  Well this never happened with Donna!  What the hell am I supposed to do here?!

I managed home chemo and surgeries and hospitals and hospice.  I managed all of that, and as sad as it made me, I always felt that I understood my role — what I needed to provide my daughter.  I look at my son sometimes and I am mystified by his actions, his intensity, his typical four year old behavior.  “What the what?” is something I have thought to myself frequently.

He might do something I don’t approve of and my first response is, “NO child of mine is gonna act like that!” And then I realize, it sinks in, that the only way my boy will know better, do better, is for me to teach him.  Lovingly.  Except I don’t really know how.  I need to remember that parenting a healthy child is significantly different than parenting a child with cancer.

Light bulb moment!

And this is where my whole Groundhog Parenting theory falls apart.  I have much to learn.  I need to learn.  I will learn.  I will stop looking backward thinking the answers lie there, in my earlier parenting.  This is the point I need to look forward — eyes on the road ahead.  As with Donna, Mary Tyler Son will be my best guide, or the Mary Tyler Son I want him to be — a happy, healthy, developing, empathic, compassionate, loving boy.

Alright, then.  Eyes on the road ahead.  Groundhog in my lap.  Here we go . . .