Governor Romney, Hope Matters

Let me preface this post by assuring you it is not a political entry, despite being inspired by the words of the current Republican presidential candidate.  I fully realize that the context of Governor Romney’s words pertained to his issues with President Obama’s stance on Mid East turmoil.  I am not writing about Mid East turmoil, or Republicans, or Democrats.  I am not writing about politics.  I am writing about hope, something I do a lot of around here.  Please do not view this post through a political lens.   

Yesterday, as I was prepping dinner, I was listening to NPR.  I turned the radio on mid-story, and heard a clip of Mitt Romney addressing the Virginia Military Institute.  “Hope is not a strategy,” is what I heard.  It was a bit like a slap in the face, as hope is my strategy.  Hope is what gets me through my days, you see.  On the bad days, I hope for better days, and on the good days, I hope for more — more joy, more life, more of the Good Things that keep me going.

Governor Romney, of course, was not discussing Cancer Moms and what they need to get through their day.  He was discussing foreign policy specific to the Middle East.  I know that.  The man is in the midst of the fight of his life and he is doing his best to connect with voters, appear presidential, and do what needs to be done to move in to that Oval Office come next January.  I get it, I do, but still, I was struck.

It made me think about hope and what it means to me, to you, to our world.  Merriam Webster’s online edition defines hope as, “to cherish a desire with anticipation,” or “to desire with expectation of obtainment,” or this, “to expect with confidence.”  Huh.  Not only do I not agree with Governor Romney on this, I don’t agree with Merriam Webster either.  Dictionary.com does better, “the feeling that what is wanted can be had or that events will turn out for the best.”  Still no cigar, but it is closer to my own definition of hope

In the midst of Donna’s illness, in June of her last summer, after we learned of the terminal nature of her cancer, my in-laws sent a book along to us.  Written by Jerome Groopman, M.D., it was called The Anatomy of Hope:  How People Prevail in the Face of Illness.  I picked it up with trepidation.  Self-help books are not my bag, and this looked suspiciously like a self-help book, complete with a single green leaf on the cover.  Yeah, I’m too cynical to do self-help. 

And I am absolutely one of those gals who judges a book by its cover.  I’ll look it over, but if the blurbs and first few paragraphs don’t grab me, I will put that sucker down.  This is the first paragraph of the Introduction to The Anatomy of Hope:

“Hope is one of our central emotions, but we are often at a loss when asked to define it.  Many of us confuse hope with optimism,  a prevailing attitude that “things turn out for the best.”  But hope differs from optimism.  Hope does not arise from being told to “think positively,” or from hearing an overly rosy forecast.  Hope, unlike optimism, is rooted in unalloyed reality.  Although there is no uniform definition of hope, I found one that seemed to capture what my patients had taught me.  Hope is the elevating feeling we experience when we see – in the mind’s eye – a path to a better future.  Hope acknowledges the significant obstacles and deep pitfalls along that path.  True hope has no room for delusion.”

At what, I hope, were the most devastating moments of my life, Dr. Groopman’s words spoke to me.  Choosing hope is not a pie in the sky venture.  It is not all lollipops and tutus and rainbows and ice cream.  It is stone, cold, hard work.  Work, people.  WORK.  Choosing hope, my personal strategy of choosing to be hopeful, does work for me.  Every day it works for me and every day I am grateful that I have hope in my life.  I see parents who have lost children to cancer who do not have hope.  They scare the bejesus out of me.  We bob along in the same ocean, those parents and I, but we are not in the same boat. 

I wrote a Facebook status about Romney’s words last night and one of my friends wrote the most profound response, “Dismissing hope can only be done by people who have never needed it to survive.”  I dare say this friend (yo, Amber) is right.  I will be the first to admit that I need hope.  I need it like I need oxygen, sunlight, and water.  Hope is necessary to my very existence these days and without it, I would be joining those other folks in the sad, bitter, angry boat.  I don’t want that for me, my husband, or my son.  I want better for us.  I want the joy that hope invites into my life, the possibility of a better future, the lightness of love and wonder and peace.  I want hope. 

So to you, Governor Romney, I say, “Hope IS a strategy.  And it works.  And we need more of it, all of us, to see us through these troubling times we find ourselves in.” 

I am Mary Tyler Mom and I approve this message.

PTSD Post Cancer

After four hours in an ER yesterday, we got the diagnosis of flat feet for Mary Tyler Son.  Hallelujah!

I had started noticing a slight limp about ten days ago.  Mary Tyler Dad didn’t see it.  My brain is hard wired for fear, so I tried not to worry.  When it started, it was more like a slapping of his foot down on the floor.  It morphed into a limp as the days progressed.  And it would come and go, too.  When I asked the afternoon crew at his school last week, they had not seen it.  That limp stayed on my radar, but I tried not to worry.

Last spring, the boy had injured his foot after repeatedly jumping off a two foot rock into the grass below.  He limped then, too.  While I couldn’t tie this limp to an incident like rock jumping, I told myself it was nothing.  It was not cancer, it was not brain cancer, it was nothing.  I kept trying to tell myself that.

One of Donna’s first symptoms was a limping walk, that quickly morphed into needing to hang onto things for support.  Limping touches some nerves around these parts.

Honestly, I was proud of myself for being able to manage the anxities associated with this limp.  I didn’t freak out too much when Mary Tyler Son awoke in the middle of the night on Monday, whimpering about foot pain.  I breathed deeply and gave him some ibuprofen.  I resolved that if the limp still existed next week, I would follow-up with something then, hoping against hope that it would simply disappear.

Yesterday, after dropping him off at school and on my way into the office, I got a call.  It was Mary Tyler Son’s teacher, “Everything is just fine, your boy is great, but we have all noticed a limp and we think he might need different shoes.”

BOOM!  Her words cut me like a thousand sharp blades.  Those words so closely resembled the words of Donna’s babysitter when her symptoms started in March 2007.  I had started to notice some slight changes in Donna before others had, but one day, picking Donna up in the afternoon, her sitter said, “You know, she’s having some trouble walking.  I think she needs new shoes.”  BOOM!

I quickly explained to the teacher that the shoes were not the issue, that I had noticed limping for over a week and that I would consult a doctor ASAP, which I did.  Before I got into the office, I had an appointment for yesterday afternoon.  Then I made the mistake of Googling, “acute limping in three year old.”  The words ‘leukemia’ and ‘osteosarcoma,’ bone cancer, kept popping up.  I could not ignore them.  As I have described before in Donna’s Cancer Story, that seed of fear in my stomach morphed into a watermelon in approximately 1.7 seconds. 

That, my friends, is PTSD in action.

This is the fourth scare we have had with Mary Tyler Son in the three years since Donna has died.  The first was a series of early morning headaches, a dangerous sign of brain tumors in young children.  Those just mysteriously disappeared.  The second was limping coupled with what looked like petachaie, a common symptom in leukemia.  That turned out to be hand, foot and mouth disease.  Last spring’s limping was the third scare.  And now this. 

Each of these scares has resulted in nothing other than the healthy boy we enjoy today.  Mary Tyler Son is growing, strong, funny, and smart.  He is so much like his sister in so many ways.  And so different in so many ways, too.

I went to the ER knowing that if we went to our local pediatrician, the tests that would be ordered could not be performed at 3:15 on a Thursday afternoon.  We would have to wait.  And wonder.  Waiting and wondering are not things I tolerate well.  Not me.  I catastrophize.  I imagine the worst.  Yes, I go there.  I always go there, and I suspect I always will.  I go there because of the PTSD that cancer left as a parting gift.  The grief and sadness were not enough.  Sigh.

 

Prince in Chicago: Date Night with Royalty

Chicago is segregated.  True story.

There is tremendous diversity within the city, but more often than not, those diverse peoples don’t mix.  As Mary Tyler Dad and I walked into the United Center last Wednesday night, one of the things we were both struck by was how amazingly, wonderfully diverse the Prince audience was.

Handshake

Gay, straight, young, old, rich, not so rich, black, white, and everything in between.  There were wealthy North Shore power couples sitting next to South Side teens.  There were Harley Davidson tees and pony tails next to Sean Jean jackets.  There were hookers (at least they sure looked like hookers) next to old ladies in their Sunday finest.  It was beautiful, people, beautiful.

The other thing that struck us was that people dressed for this.  It was an event and people paid attention to what they were wearing.  We don’t do that enough.  Men and women were turned out.  Turned out — black velvet, purple stockings, brocade shoes, fedoras, heels, lace, spandex, animal prints, and pearls.  It was a thing of beauty, like Sunday church, but on a random Wednesday night.

Hooker Shoes
Green Fedora

I’ve been a fan of Prince for many, many years.  1999 was released shortly after my 13th birthday, Purple Rain released when I was 15.  The music you listen to as a teen, when angst runs high and identities change like underwear, is the music that sticks with you.  At 42, I still believe Purple Rain is some of the best music ever made and sounds as relevant to me today as it did to my 15 year old self.

I once heard that the true definition of a Prince fan is someone who knows where they were the first time they heard “When Doves Cry.”  Check and check.  Me?  I was sitting in my Dad’s used Cadillac, driving around Minneapolis (Prince’s home town), visiting my oldest sister.  Some radio station was playing an early copy. I was mesmerized.  Transfixed.  We had stopped to park and I begged my Dad to let it play out.  He was not one to indulge his kids’ requests, but he did.  Maybe the old goat was a bit transfixed himself.

Prince

That power to transfix is why Prince draws such an all encompassing crowd.  We all want to be transfixed, don’t we?  His music is full of life and joy and grit.  And, let’s be real, sex.  Life is dirty and so is Prince’s music.

His show was amazing.  Just as I had hoped it would be.

I had never seen Prince live.  I would see him on TV and be amazed.  The guy is so damn mesmerizing.  Do you remember the Superbowl halftime show he did in 2007?  Hands down, best thing about football that night.  Anyways.  I had never seen the man and wanted to, badly.  He did not disappoint.  He came out in yellow yoga pants.  Yellow yoga pants, folks.  Think about that.  Who on earth looks good in yellow yoga pants?  I’ll tell you who — Prince does.  Damn, that man is sexy.

The show was a lot like Prince himself — short and full of awesome.  It clocked in at 90 minutes, minus encores.  Too short, but every moment of it was on the money.  In the end, 90 minutes of perfection, 90 minutes of forgetting your sorrows, 90 minutes of dancing with my man and 23,000 other Chicagoans.  It was all good.  So very good.

The encores were also good.  The concert ended with the most democratic of dance parties to some of Prince’s protege’s hits from the 80s — Morris Day and the Time and Sheila E.  I wrote in Donna’s Cancer Story, “You have not fully lived until you have danced with young and old alike.”  There on Prince’s stage were folks as old as 70 and as young as 5 or 6 singing and dancing and laughing and so damn full of life.

It was a privilege to be there.  Thank you, Prince.  You sexy motherfucker.

Brocade Jacket
Photo Op
Purple Rain