Chocolate Cake With Numb Frosting, Please

Sunday, July 20 marks my daughter’s would be 9th birthday.  Those days are hard on me — those phantom birthdays of Donna’s.  Given my druthers, I would curl up in a wee little ball in a dark room and not show myself until the morning of July 21.  I always breathe easier the day after a milestone of Donna’s.  The emotional burden of some specific date passes and I know, I feel, that I have 364 days until it makes its way back again.

Donna Candles

I try to imagine what it might be like to parent a tween girl, my tween girl.  I can’t.  It’s just blank.  I can’t imagine what Donna would be like at 9.  I mean I can try, but my efforts are pretty useless.  For one, am I imagining a nine year old Donna who never had cancer?  One who sasses her Mom and wants to shop at Justice?  A girl who plays Minecraft and still dances at recitals?

Oddly, it is somehow easier to imagine a 9 year old Donna who has survived her cancer diagnosis, but is living with the badges of honor her treatment left behind.  She is sweet and has short tufts of hair that never quite grew back after chemo and radiation.  She still reads a lot and wears black, too. We travel to the hospital, for regular visits with her oncologist, but the visits are much less frequent.  We make a day of them, those hospital days in my imagination, having lunch at Water Tower or Eataly.

By 9, had Donna survived, some of the ramifications of brain radiation would have asserted themselves.  Maybe her memory was impacted, or her comprehension.  You see, you can’t irradiate a three year old brain and not cause lasting damage.  No doubt she would be on synthetic growth hormones and acutely aware that other girls in her grade were developing in a way she never would.

That thought breaks my heart — knowing that because she died, Donna was spared the cruelty of unknowing folks.

Donna’s birthdays trip me up, too, because I never know what to do with them.  It doesn’t feel right to celebrate them.  It doesn’t feel right to ignore them.  Like I said, my preference would be to hole up in a cave with only a fully charged iPad and a mainline of Coca Cola, but that really doesn’t work for my husband or sons.  Indulging my wish to lick my maternal wounds isn’t, well, very maternal.

This year, in an ironic twist of fate only the Universe could provide (cruel, baiting Universe that she is) we have been invited to a 5th birthday party for a little girl we barely know.  She is one of Mary Tyler Son’s future kindergarten classmates that he met at orientation last month.  She is adorable and sweet and took an instant liking to our boy.

Were her birthday being celebrated on July 19 or July 21, this would be a non-issue and of course I would go.  But this dear girl’s birthday is being celebrated on July 20.  A 5th birthday party on July 20 with cake and pizza and presents and a room full of people singing happy birthday.

I don’t think I can do it.

I don’t think I can stand in a room full of strangers and sing happy birthday on July 20 to any girl that is not my girl.  I am weak that way.  Or bitter.  Or both.  Or just sad.  So terribly, terribly sad.  And to a certain degree, damaged.  Broken.  Changed.

It is what it is.  I will send Mary Tyler Son with his Dad and we will figure something else out for the rest of the day.  Sigh.  The rest of the day.  The rest of all of the days.  Yes, we will figure something else out for the rest of all of the days.

I miss you, dear Donna.  Every day.  And every day I work to remember all the amazing things you taught me.  

We’ll meet you there, girl.  We’ll meet you there.

Magritte and My Husband

When I was 26, I flew across the ocean to visit the young man I had started dating just six weeks before he moved to Europe to work in a small theater as a barkeep and fill-in performer.  He was dreamy and living in a garret apartment in Amsterdam, so OF COURSE I FLEW ACROSS THE OCEAN TO VISIT HIM.  My spontaneous acceptance of his spontaneous offer to come visit was, to this day, one of the best decisions I have ever made.

So for ten days in August of 1996 I lived the life of a young woman in love hanging out in Europe with my handsome young man.  Those are some of my sweetest memories.  We rented a car and drove across the Netherlands and into Belgium.  I knew he was a keeper when I failed miserably at learning how to drive stick in the pouring rain and he had to push the car I had stalled out in a busy intersection and he still thought I was adorable and forgave me instantly.

One of the things we did on that trip was visit the Rene Magritte wing at the Modern Art Museum in Brussels.  I have always loved Magritte.  His art is clever and smart and precise and winsome.  He had such a clear aesthetic and I find his particular take on surrealism so much more accessible than Dali or some of his other contemporaries.  You know when you read a book or see a film or painting that just speaks to you? Magritte speaks to me.

Shhhh.  No photography in the galleries, but I'm badass that way.  I've always adored Magritte's trim, precise signature.
Shhhh. No photography in the galleries, but I’m badass that way. I’ve always adored Magritte’s trim, precise signature.

Yesterday, almost 18 years later, my now husband and I went to see the Magritte exhibit at the Art Institute of Chicago.  We are no longer young. We are, though, still in love.

As we walked through the galleries, sometimes together, sometimes apart, and looked at Magritte’s art — still as clever and potent to me as ever — I was reminded of our Brussel museum visit so many years earlier.  It is really something to spend your years together with the same person.  It is a gift of life that not everyone gets.

We talked about our son who we both thought would enjoy the paintings. He will start French lessons in school this fall and would get a kick out of Magritte’s simple declarations, Ceci n’est pas une pipe.

Speaking of badass, Magritte's comment on this iconic painting, "Well of course it's not a pipe, it's a painting."
Magritte’s comment on this iconic painting, “Well of course it’s not a pipe, it’s a painting.”

Eighteen years ago, walking through a different museum in Brussels, there is no way I could have imagined the life we are now living together.  In that time we’ve cared for and lost a child to cancer, are somehow surviving our grief, created three homes together in our beloved Chicago, are raising two boys together.  I’ve left my career in social work behind, and now write words that people actually read.

In so many ways, life is like those galleries you walk through in museums.  Some of the rooms are bright and full of light and interesting, rich, joyful art that you could linger in for ages.  Other galleries are dark and poorly lit and depressing as hell.  You want to leave and leave now, but it’s not always so easy to move from one room to another.  Some galleries are just meh, humdrum, boring.

I feel so lucky to have been walking through museum galleries with my husband for eighteen years now.  We’ve seen much together, appreciated some of it, feared some of it, trudged through some of it, but always together.  Best of all, I still feel excited to see the galleries yet to come, the hidden treasures we have yet to find.

Ceci n’est pas une billet doux.

Why I Love the Fourth of July

Friday marks one of my very favorite holidays — America’s birthday.  I love birthdays.  I also happen to love parades, fireworks, and the occasional hot dog, albeit Hebrew National.  America is my home, a country I live in because my grandparents left their homes in Ireland and Croatia to seek something different, and they hoped, better for themselves.

USA Flag

I grew up hearing my father say that America was the greatest nation on earth.  That we were just and democratic and full of opportunity.  I felt proud as a child and fondly remember our celebrations on the 4th.  The bicentennial in 1976 involved a hometown parade, a carnival, marching bands, and snow cones from the Italian grocer on the parade route.  I remember it well, even down to the denim shorts I wore with the red, white, and blue elastic waist.  In high school, I marched in that same parade and remember feeling so grown up and happy, waving at the kids on the curbs.

The block I grew up on in Dolton, a south suburb of Chicago, was a close one.  The kiddos all played together long into summer evenings.  The parents seemed to get along okay, too.  I can still recite the names of the families from one end to another.  Around dusk on the 4th, after folks had gotten home from the town carnival, an annual event, we would gather and have a block party.  We got to stay up late and watch the dads shoot fireworks in the street. There were lawn chairs and sprinklers and good times and running around and laughter and excitement.  The flaming sparklers were always held at arm’s length, as the sparks made me nervous.

I’m not sure what my family will be doing this year.  Celebrate, for sure.  I bought my boys matching red, white, and blue outfits.  Our local park is starting a parade for the little ones in the morning, so we’ll be sure to hit that.  I hope to catch some fireworks, but that’s hard when the baby has an early bedtime.  We’ll work something out.

I was thinking just how different my son’s Fourth of July celebrations have been from my own as a child.  It’s a different thing to celebrate America’s birthday when you live on a block of condominiums full of Orthodox Jews, Eastern Indians, Muslims, Latinos, and a mix of other folks. Not too many of us fire up the grill or break out the cherry pie in their back yards.  We’ve traveled to small towns in Indiana and Massachusetts on the 4th the past few years, so this year will bring something new for us.

And I don’t think I could so easily tell my son that America is the “greatest nation on earth,” like my Dad did in the 1970s.  We have some issues in America that could use some attention.  We’ve lost some civility and after some of our actions around the globe, I’m not certain that we can still claim the title of “most just.”

But still, America is my home and my country and I love it here.  And that is something I can easily and happily share with my children.

We are a nation of immigrants, my own grandparents included.  Without traveling far at all from my front door, I can eat huevos rancheros for breakfast, wood smoked barbecue for lunch, and an Indian feast for dinner.  That’s pretty cool.  Our local park is like a mini United Nations and children of all stripes and ethnicities love to swing and climb trees and run through a sprinkler.  So many things are universal, at least for kids.

Spending as much time as I do on the Internet has taught me so very much about how very little I know about different cultures, even those home grown cultures here in America.  We are different in so many ways, aren’t we?  There is a comfort, though, in knowing that on Friday, no matter if we vote red or blue, or own a gun or don’t, or worship in a church or under a canopy of trees, or educate our kids in public schools or at the kitchen table, so many of us will gather with friends and family to celebrate America’s birthday.

Those fireworks are just as awe inspiring to liberals as they are conservatives.  Those parades are just as much fun if you live in a trailer park or a North Shore home with lake views.  And fried chicken and grilled burgers taste just as delicious if you choose to vaccinate your children or not. I love that folks I know and don’t know, folks I agree with or disagree with, will all be doing the same kind of things.

On Friday, I’m sharing my love of America loud and proud.  I will celebrate our diversity and history, eat some traditional favorites, clap for some Veterans and teach my sons to do the same.  It’s going to be 78 degrees and sunny in Chicago and you best believe we will be out enjoying all that this favorite summer holiday has to offer.  And, yep, I will be wearing my red, white, and blue the whole time.

Happy Birthday, America!