Feeding Jacob

This is a guest post by Carolyn at Fumbling Toward Naptime.  I hope you enjoy her writing as much as I do!

By Carolyn Rabin

My son, Jacob, can eat me under the table.   Okay, maybe I’m not a huge eater.  But I’m not that picky either.  And the child is only four years old.

We got our first glimpse of Jacob’s voracious appetite the day we introduced solid foods. That was just the beginning.  It seemed that as soon as Jacob got a taste of . . . well, anything, he was hooked.  And wanted more.  MUCH more.  So, for the past four years, I have had the same conversation with Jacob’s (incredibly patient) pediatrician at each and every well visit.  It has gone something like this.

Dr. F: Do you have any questions for me?

Me: Is it possible for a human being to be born without the ability to experience satiety?

Brief, slightly uncomfortable pause.

Dr. F: The important thing is to just keep offering Jacob healthy foods.  No child ever became obese from eating too much broccoli. He can have as much broccoli or as many carrots as he wants.

I get it.  But sometimes there is just no end to it.  Even before Jacob mastered spoken language, he found a way to communicate his desire for more, and more, and more food.  I don’t know if he was truly hungry.  Or just enjoyed eating so much that he didn’t want to stop.  “I think he’s just bored,” my husband Dan would say.  Then Dan would try to distract Jacob with something really stimulating– like opera or Japanese literature or watching Dan program in Java on the computer. Oddly enough, Jacob was more interested in food.  This never ended well.  Jacob’s initial euphoria at being put in his high chair would inevitably turn to utter despair when (after his eighth helping) we finally cut him off.  So, we began luring him away from the table with the promise of watching Sesame Street videos.  I know, I know, AWESOME parenting.  (We. Were. Desperate.)

On the positive side, even as a toddler, Jacob was as delighted with broccoli and string beans and tofu as he was with sweets. He would eat nearly any vegetable.  And, of course, he just loved fruit.  So, we started calling fruit “dessert”. Which, honestly, made me feel a little dirty.  Because fruit is NOT dessert.  I love fruit too. But it is not dessert.  Full disclosure: I am addicted to ice cream.  I must eat it.  MUST. EAT. IT.  Every day.  (Don’t judge me, you latte addicts.)  A nice, creamy vanilla with chunks of cookie dough?  That’s dessert.  A nice apple?  NOT. DESSERT.  But since we didn’t want Jacob to even know that ice cream existed, out came the apples at the end of each meal.  (GAH.)  We would have been able to maintain the charade much longer, if Jacob hadn’t been in the 90-bazillionth percentile for height (thanks entirely to Dan’s genes) and able to reach the freezer door before the age of three.  If it hadn’t been for this, he might not have known about ice cream until, say, kindergarten . . . when he heard about it from some bad seed on the playground.

But I digress.  Because we have never wanted to tempt Jacob with sugary foods, we never eat REAL desserts in front of him.  Let me just say that nothing will make you feel more like a junkie than having to hide your ice cream habit.  Usually, I just wait until Jacob is asleep to break out my stash.  But sometimes, I just can’t wait. So Dan covers for me.   And distracts Jacob.  While I skulk off to the kitchen and rapid-fire-scoop a bowl of something.  Ahhh, that’s the stuff.

Of course, there were times, even when Jacob was still a toddler, that he did have sweets. For instance, when my friend Joe came to visit a few days after my birthday and brought a box of cupcakes.  I didn’t want to be rude, so I served them.  To everyone.  Including Jacob.  The next thing I knew, crumbs were flying. Frosting was smeared all over Jacob’s face.   And all that was left of Jacob’s cupcake was a crumpled wrapper. Suddenly, Jacob slid off of his seat, threw himself on the ground and started wailing.  LOUDLY.  Joe (who does not have children) looked panicked.  “Did he hurt himself?  Is he okay? What’s WRONG!?!” Joe asked.  WHAT’S WRONG IS THAT I NOW HAVE TO EXPLAIN TO YOU THAT MY CHILD IS HAVING A CUPCAKE-IS-GONE MELTDOWN.  Joe got a terribly pained look on his face.  And tried desperately not to laugh.

Nom nom nom.
Cupcake Exhibit A (nom nom nom)

Around this time, I had another well visit with Jacob’s pediatrician.

Dr. F: At this age, children’s appetites can vary quite a bit day to day.  Don’t be concerned if there are days when he seems to eat and eat and then other days when he hardly eats anything.

Me: Okay, I’m following your first point.  But could you explain the “hardly eats anything” part again . . .?

Jacob had a stomach flu once and didn’t miss a meal.  Seriously.

Of course, as Jacob has gotten older– and taller– he has become more aware of things.  As I mentioned, he can now reach the freezer door.  (Curses.)  So, he now knows that we (ALWAYS) have ice cream in the freezer.  But, we call it a “sometimes” food.  (Lies, lies, damn lies.)  Occasionally he will say, “Mommy, can I have some ice cream?  It is sometimes NOW.”  I hear you kid.  Mommy could use a fix too.  We’re not as restrictive with Jacob as we used to be.  Sometimes we give in.  It’s hard not to.  Jacob has become quite the negotiator.

Jacob: For dessert tonight, I think I’ll have ice cream with animal crackers on top.

Me: That’s not a choice tonight, Jacob.  You can have an apple or a pear or a banana . . .

Jacob: I WANT ICE CREAM WITH ANIMAL CRACKERS.

Me: I’m sorry, Jacob.  That’s not a choice.

Jacob: FINE.  (Eyeroll.)  Then I’ll just have ICE CREAM.

Me: Okay.

Wait a minute . . .

At Jacob’s four-year-old visit with Dr. F, the good doctor again reassured me that Jacob might be finicky about food at times.

Dr. F: Don’t worry if there are days when he hardly eats anything, he–

I cut him off.

Me: Dr. F, you’ve said this a number of times.  The child is now four years old.  There hasn’t been a day-  NOT. A. DAY- when he hasn’t wanted to eat as much as possible.  Some days when I ask him what he wants for lunch he says, “I want A LOT of food”.  I’m not making this up.  I know there are four-year-olds who barely eat anything.  Jacob is not one of them.  Is this normal??

Dr. F looked at me, stunned.

A few months after that conversation, the tide suddenly turned.  I’m not sure why.  Maybe it was something internal, like a shift in his metabolism.  Or maybe something more intentional.  Perhaps Jacob just realized that he prefers the food at preschool (pizza, chicken nuggets, waffles . . .) to what we offer at home (veggie burgers, baked chicken, quinoa . . . ).  Whatever the reason, suddenly we were seeing more and more left on Jacob’s plate at the end of a meal. And Jacob turning his nose up even at some old favorites.

The day before Thanksgiving, my sister was visiting. Jacob was so thrilled to have his auntie at the table that he could barely sit still.  Or eat.  As Jacob danced around the dining room, I pleaded with him.

Me: Jacob, can you please try to eat a bit more.

Did I just utter those words?

Jacob: No, thanks.

Me: Jacob, if you don’t eat any more you’re going to be hungry later.

Jacob: That’s okay, Mommy.  I have a plan.

Me: What is it?

Jacob:  I’m going to have a big dessert.

Me: Oh.

Wait a second . . .

Carolyn Rabin is the mother of two lovable but exhausting children (Jacob, age 4, and Emma, age 1).  Despite having a degree in clinical psychology, she is clearly no match for their antics.  You can follow her blog here or find her on Facebook here.

The MOST: A Story of Friendship

This is a guest post by a regular reader turned friend of this blog.  It explores the bonds of women’s friendships and how they are so instrumental in mothering.  I am proud to share it with you.  

By Vicki Goedert

It started out simply uniting over pacifiers, potty training, and play groups. Our particular journey began in the late 1990s when one by one each of us seven women joined and eventually served on the board for a club that supported Moms Of Multiples (MOMs). As moms of twins you automatically feel a kindred spirit with one another and this particular group was based on commiserating and comforting each other through the early stages of raising multiples. Little did any of us know with each baby step our children took we would be the ones forging everlasting bonds.

The first baby steps turn into school pictures, little league and piano lessons and as our twins (and maybe us too) grew, the need for guidance from a large membership diminishes and the camaraderie of a few allies increases. We started our own splinter group and promptly settled on a fitting name and henceforth referred to ourselves as “The MOST” (Moms Of School-aged Twins). We continue to label our monthly GNOs (girls night out) as club “meetings” and converse of the daily grind of motherhood over dinner, wine and pedicures.

Raising Twenty-two (yes, 22) children between the seven of us has been quite an undertaking. Amazingly, as the months turn into years we are all there to cheer and comfort each other through triumphs and tragedies. Seeing one another through joyous new careers and unexpected layoffs, surprise (albeit welcomed) pregnancies and imminent passing of parents, celebrating anniversaries and “celebrating” divorces. The bonds are sealed through crooked teeth and braces, broken bones and casts, and that ever so terribly disturbing diagnosis, cancer. Our support never wavers even when sending children off to college to only have them move back home one semester later. We celebrated each new decade of our own lives with good cheer, and dreadfully had to stand by and watch as one of our own buried her child. But we gather, we unite and we support.

 Our gatherings lead to talking, crying, laughing, and even swearing (well some swear more then others) but we always unite. When we have our little “meetings” it cleanses the mind, the body and the soul! It strengthens us individually and ultimately strengthens our bond to one another. The definition of unity is the state of being combined into one, as of the parts of a whole. It has been a year since all seven of us have been in one room together so at this “meeting” we decide to take a group photo. Not just any photo but a unique one. In light of our newly gifted infinity bracelets we decide on a so-called “Wonder Twins power” pose! We grab the closest ‘twin’ kid to click the shot and place our hands together! United, we laugh and the picture is snapped in a second flat.

Photo courtesy of Vicki Goedert
Photo courtesy of Vicki Goedert

As we all admire the black and white, we are in complete awe. The seven of us are uniformly silent, a true rarity. This picture speaks volumes. It says trust to one, multiple blessing to another, friendship, a lasting bond and to all of us it says support. Small integral parts that upon being combined, become a whole, and ultimately our

Infinite Unity!

About the author:  I am a devoted wife, nurturing mother, supportive daughter, caring sister, true friend, dedicated volunteer, upcycling crafter and a proud Downers Grove resident. I am thankful every damn day for these many roles I portray but more importantly I am thankful for all the people who share their lives with me!

Kyla Rae’s Story: When Hope Was Lost

September is Childhood Cancer Awareness Month. Each day I will feature a different guest blogger who will generously share their personal experience with childhood cancer.  Stories are always more potent than statistics.  The hope is that by learning about children with cancer, readers will be more invested in turning their awareness into action.  Read more about this series and childhood cancer HERE.

By Ellen Ochs Tillem

On Rosh Hashanah [it] will be inscribed and on Yom Kippur [it] will be sealed…Who will live and who will die. Unetanneh Tokef from the High Holy Day Liturgy.

During the fall of 2011, we sat with our daughter between us during the Jewish High Holy Day Services.  We were fresh out of treatment and in the early, halcyon days of remission.  As we sat and recited these words, we were so sure, so full of HOPE that we were among the lucky ones.  As fate would have it, Yom Kippur of that year was also Kyla Rae’s sixteenth birthday.  It seemed as if the stars had aligned to make everything right.  We recited those words with such confidence.

Kyla Rae with Mom and Dad
Kyla Rae with Mom and Dad

Fast forward six weeks, and our world came tumbling down.

It was the Monday after Thanksgiving.  We were all still living in the realm of HOPE.  We had resumed our annual post-Thanksgiving party which that year also served as a celebration of Kyla Rae’s remission and a thank you to some of the many people who had supported our family during the previous year.  My daughter came to my room after getting dressed for school.  I was stealing a few extra minutes under the blankets before getting up to go to work.  “Mom, I found a lump in my breast while I was getting dressed.”  CRASH!!!

I hopped out of bed and told her to lie down so that I could feel it.  I still remember telling her that it was probably nothing, but it was a LUMP.  I kept reassuring her that I really didn’t think it was anything but that we would call the team as soon as clinic opened and go straight down just to make sure.  I didn’t let her eat breakfast in the hope that we could get an emergency PET scan that day in order to reassure her that all was fine.

We were in the clinic by 10 AM.  The doctor on call reassured us that the location of the lump was a very unlikely sight for reoccurrence but that he felt multiple lumps…in both breasts.  By noon, Kyla Rae was having a PET scan.  “Smart mom,” I heard, “not letting her eat breakfast.”  By 3 PM we were back with the doctor and our favorite nurse practitioner.  The doctor told us that indeed there was something there as well as something in her sacrum, but that it was probably not cancer.  LIAR!!  One look at the tears coming from the eyes of the nurse practitioner told us that this was not true.  We were sent home with the promise that we would hear the next day about scheduling a biopsy to determine what the “lumps” were.

A few hours later I received a call from Kyla Rae’s primary oncologist.  He asked me what we had been told earlier that day.  After relating the conversation that we had with Dr. LIAR, he told me to forget what I had heard.  The cancer was back, there were multiple tumors, and our only option was palliative care.

But wait.  Rhabdo doesn’t show up in the breast.  Isn’t that what Dr. LIAR told us?  Rhabdomysarcoma is a muscle cell tumor.  It can show up any where there are muscle cells I was reminded.  We discussed plans to return to the clinic on Thursday and the call was ended.

By this time, my daughter, my husband and my son (our other daughter had returned to school the previous day believing as we all had, that her sister had beat the monster) had followed me into the living room.  I looked at my daughter and she said to me, “I am going to die, aren’t I.”  No parent should EVER have to hear those words from her daughter let alone have to confirm them.

Five months later on a rainy day in April, we buried our daughter:

Kyla Rae Tillem, Forever Sixteen. Dancing with the Angels.

Update:  Today marks seventeen months since our daughter lost her battle with cancer.  My husband and I have both returned to work full-time.  Our two older children have continued their college studies.  Zara, our oldest daughter will graduate from Syracuse University with a Bachelors of Architecture next June.  She has managed to stay on track despite the loss of her sister/best friend and as she said in her eulogy for Kyla Rae, her future maid of honor.  Our son, Benjamin finished at the local community college in June and has since transferred to the Park School of Communication at Ithaca College.  He has also made connections with people at both NBC and the Office of the Mayor of New York City so that other teenagers with cancer can attend special events.  We couldn’t be prouder of the way these two have managed to continue on despite the loss of their “baby sister.”

My husband and I are now officially empty nesters.  Kyla would have graduated high school this past June and also would have left for college this fall. Somehow this empty nest feels emptier.  There was no freshman orientation, roommate drama or convocation for  us to attend this time around.  Despite all of this, we are making a life for ourselves and trying to live each day in Kyla Rae’s light.  We continue to shed tears and miss her in a way that is beyond description.  Tears continue to flow at the most unexpected and inopportune times, but we made her a promise to find a way to continue on and so each day we try to live up to this promise.  Our other children deserve at least that much from us and so much more.

Dancing Kyla
Dancing Kyla

Kyla Rae was a dedicated ballerina and danced intensively for ten years prior to her cancer diagnosis.  We have established the Kyla Rae Tillem Memorial Dance Scholarship at the Ballet School of Stamford where she danced, so that young dancers that otherwise could not afford to, can take ballet class.  Donations can be made via their website linked above, but please indicate on the donation form that it is for KRT Dance Scholarship.

If you’re looking for all of the posts in the  Childhood Cancer Stories: The September Series, you can find them catalogued HERE.  

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