The Junk in My Trunk

When I was in graduate school I trained in the PTSD Clinic of a local VA Hospital.  All of my clients were Vietnam veterans.  I was a 26 year old woman.  What the hell did I know about Vietnam?  Not a whole lot, it turns out.  I spent the summer before I started educating myself by reading everything I could get my hands on about the war, the era, the soldiers, the Vietnamese.  It was an interesting summer.  Powerful and humbling.

Novels were the things that helped me the most.  A good novel reveals truth.  Tim O’Brien wrote a book (a hybrid of memoir, novel, and story collection) called The Things They Carried about a platoon of soldiers in Vietnam during the war.  The title refers to just as it says — the things the soldiers chose to carry with them in their rucksack, the premise being that those things were in some way indicative of who carried them.  The things captured some essence of their carrier.

That idea, that we keep the things that matter to us close, has resonated with me ever since.  It hit me like a ton of bricks a few weeks ago when I opened the trunk to my car.  What I saw was a hodge podge collection of stuff, some of it junk, that so completely reflected my life and its particular chaos.  So here it is, an ode to Tim O’Brien, and a reflection on the junk in my trunk.

Junk in my Trunk

A log.  

This cut log is from the cemetery where my daughter rests.  She is buried in a “nature sanctuary,” which means that she is surrounded by trees.  This is why we chose where we chose for her to rest, despite it being a 90 minute drive.  It is peaceful and lovely.  The sun plays through the trees and dapples Donna’s gravestone.  Nothing I plant grows there — I can’t for the life of me keep the deer away.  And that’s okay.  They keep Donna company.  Right now, like so much of the rest of America, they are trying to do more with less.  Seems like the sleepy nature sanctuary we chose in 2009 is all the rage now.  Green burials, they call it.  They are cutting down a lot of trees to make room for more graves.  More nature with less trees.  Yeah, it doesn’t make sense to me either.  I took this log in July, wanting a piece of what was close to Donna to be with us now.

St. Baldrick’s Banner.

Last March, Donna’s Good Things held it’s first annual St. Baldrick’s shaving event.  We raised $77K for pediatric cancer research through the kind help of a lot of friends and strangers.  Extraordinary.  We’re doing it again next March 30.  Do you have a head?  Do you want to shave it for kids with cancer?  You can.  I’ll be there and so will this banner.  Somehow it never made its way inside.  I can’t quite wrap my head around needing to find a place in my home for a St. Baldrick’s banner.  It’s safer in the car.  I can ignore it more easily there and then take it out when I need it again.

Mary Tyler Son’s Artwork.

What do you do with all this artwork?  Where is it supposed to go?  I haven’t quite gotten around to sorting it out.  Pinterest tells me I should photograph and scan it.  Ugh.  That requires a level of organization and forethought that escapes me.  Some of my friends frame it and proudly display it in their home.  I wish I were that Mom.  I’m not.  That, too, requires effort that I can’t quite seem to find.

Blue Blanket.

This is my husband’s blanket.  It is old and ratty.  An adult version of Linus’ blanket, if you ask me.  He won’t allow us to get rid of it.  We keep it in the car because it’s just sensible to have a blanket in the car, but damn if I want that thing around me in an emergency.  Ick.  They say there are no athiests in a fox hole and there’s probably no germophobes in a freezing car either.  At least that’s what I tell myself.

Office Stuff.

I quit my job last month.  Yep.  Closed up my cube and now its contents sit in this box in my trunk.  There are two other boxes from the last office I closed in our storage room.  Mary Tyler Dad complains about them all the time.  I can’t quite bear to add one more to that pile, so here the box sits.  In the trunk.  Sigh.

Twig.

This twig is in the shape of Mary Tyler Son’s first initial.  He found it on a trip to the beach a few weeks ago.  I picked him up from school and it was unseasonably warm.  I made a left instead of our usual straight, just on a whim, and we headed for the Lake.  I am so grateful for spontaneity in my life.  There are so many possibilities in it.  Like unexpected “nature dances” on a warm fall day that entail nothing more than spinning ourselves around in a circle until we fall in a heap on the sand, laughing, hugging, and kissing.  This twig will find its way inside, to be hung on the boy’s wall, so we can both remember a warm afternoon in the sun, spinning in the sand, hugging and kissing and loving.

Glitter.

Lots and lots and lots of glitter.  Mary Tyler Son goes to the school where Donna went.  We see her teachers frequently.  That brings us a lot of joy.  Back in 2009, though only knowing her for a few weeks, they came to visit during her vigil.  They got to say goodbye and give us some much appreciated love and hugs.  The day after their visit, Donna died.  As a memorial, they had the children in Donna’s class decorate a pumpkin.  A big, bedazzled, feathered, painted, glittered pumpkin that only pre-schoolers are capable of making.  For young kids, more is always more.  The pumpkin has become an annual tradition in our home.  We look forward to it and it brings us joy.  This year, because we are at the school, we got to carry the pumpkin home ourselves.  That glitter is gonna stick around for a while.  And that’s okay.  We all could use a little more sparkle in our lives, right?

Separately, these things are just a collection of a lot of nothing.  Together, they tell a story.  My story.  The story of my life today and how I’m a little overwhelmed by it all.  Lord, what a mess it is.  But it’s my mess.  And I cherish it.  And I carry it all close.  Perhaps too close, but since I took this photo, I moved the log to my coffee table, so that’s progress.

What junk is in your trunk and what does it say about your story?

A Good Day in America

Today is Election Day.  I am a democracy dork, so that makes it pretty special in my home.  As long as I can remember, I have been interested in the larger world and how politics impacts our little worlds.  I have fond memories of hanging on to my parents thighs as they waited in long, long lines to vote, my neck straining from looking up, trying to get a glimpse of all the adults above me, imagining all the important things they were doing.  I distinctly remember the metallic noise of the curtain closing behind my Mom and I as she entered her votes.  The curtains were blue and scratchy and the booth was small.  I liked being inside, as the mysteries of voting were a lot less mysterious in there.

We had spirited conversations at family dinners about what was happening in Washington, D.C. and Chicago and Springfield — the three capitals of politics that most impacted our day-to-day life.  As a young girl, I got caught in a melee when a classmate insisted she was allowed to actually vote with her parents.  I would have none of that fairy tale.  My little girl self knew the score.  No vote until you are 18.  Period.

Today, we woke about 6 AM.  Mary Tyler Son needed to be leaving for school by 8, so we opted to vote first and breakfast later.  All three of us walked to our polling place, a local synagogue.  I carried graham crackers and raisins for the boy to tide him over.  I was a little sad to see no line outside the door, as my Facebook friends in a few places had already described.  This was Mary Tyler Son’s first presidential election.  He knows who Barack Obama is and has identified Mitt Romney as Obama’s bodyguard.  Regardless of their position in his eyes, I love that my three year old knows both candidates’ names.

The last time I voted in a presidential election, Mary Tyler Son had yet to be born.  That bun was still in the oven.  I was nursing him by Inauguration Day, Donna still at my side.  A lot can change in an election cycle.  What hasn’t changed are the butterflies I feel, waiting for results, an all too familiar combination of hope and fear.

I am naive, you see, believing that yes, my vote does in fact matter, despite the fact that neither candidate has courted Illinois and that I live in a district where an incumbent runs unopposed in many of the more local races.  I don’t care.  The most important vote I cast today was for Mary Tyler Son’s future, that he too will grow up to honor and respect and feel grateful for the democracy he was blessed to have been born into.

Mad props to my parents who taught me well.  I am so grateful that they allowed their four year old daughter, little ‘ole me, to watch as Richard Nixon resigned.  I am so grateful that they kept me home from school on a warm day to go to the local high school to see President Carter in a town hall meeting.  Seeing Marine One land in the field where I had played a thousand afternoons was thrilling.  The Secret Service inspecting my school bag made me feel dangerous and important all at the same time.  I am so grateful to my parents who respected my 10 year old self enough to talk about their vote for John Anderson, the Independent candidate, in 1980.

All of those memories shaped the voter I am today.  All of those memories shape the voter I hope my son will be one day.  I hope I am teaching him as well as my parents taught me.  Only time and a few election cycles will tell.

Ballot Receipt

Cancer Mom v. Mom

Yesterday night I opened up the old gmail account and saw a new email from HuffPost Live marked “time sensitive.”  Well I opened that pup right up, curious what was going on.  I had pitched myself as a pediatric cancer advocate to them in September, thinking that might be a good time to do a piece on childhood cancer awareness.  I got no response from them.

That’s cool.  I’ve come to embrace that everyone is not a pediatric cancer advocate or as passionate about it as I am.  It makes sense to me and I completely understand that raising awareness is a process.  Ten years ago, pink did not have the same impact or significance it has today — awareness and advocacy take time to develop.  I resolved to try again next year, crafting a more compelling pitch that would be harder to ignore.

Well, it turns out they liked the pitch.  The producer who wrote was very kind and knew it was short notice, but she had the perfect opportunity to feature a HuffPost Live spot aimed at raising awareness about childhood cancer.  I would be paired with a few other pediatric cancer advocates, including HGTV’s The Property Brothers.  Turns out, those guys are really great supporters and advocates themselves.  Yea, Property Brothers!

Boo!

Today is Halloween.  The feature is scheduled for 5:30 PM, Chicago time. That is PRIME trick-or-treat time.

I said no.

My childhood cancer advocacy has become very important to me, albeit unexpected.  After Donna died, I was pretty resolute that I was done with cancer.  It had taken by Mom and daughter, two amazing Donnas, and I didn’t want to willingly give it any more of my life.  Mary Tyler Dad and I agreed on this point.  Well, things change.

A little time passed and the immediate sting of Donna’s death had lessened a sliver.  After a couple of years, I found myself more and more engaged with the gross disparity between funding of research for pediatric and adult cancers.  The evidence is so damning, that it is hard not to want to contribute what I can and actively use my social media voice to do so.  With last year’s publishing of Donna’s Cancer Story, I had the childhood cancer bug.  I was and remain committed to raising $ to fund better and more research so that fewer families will know the pain we live with daily.

And despite this passion and commitment, it was easy for me to say NO to HuffPost Live.  Today is Halloween.  My boy has been looking forward to this day for weeks.  Months really.  At 5:30 PM, I know just where I want to be and it is at his side, holding his hand, walking from door to door, begging neighbors for candy.

One of my children is alive.  Another is dead.  I parent them both.  Sometimes, the needs of the child who is alive trump the needs of my child who is not.  Harsh as that is, it is my truth.  The further I get into advocacy, the more time and attention it takes, the greater the need for me to balance these needs, which are at times opposing one another.

One potential solution that makes sense to me when I feel pulled, with obligations to advocacy v. obligations to Mary Tyler Son that very well might overlap one another, I think I need to choose life.  In the ring of cancer v. life, I think it will be important to always choose life.  Today is the perfect example.  Spend a few hours prepping for a 20 minute appearance with other childhood cancer advocates and worried about my hair and lipstick, or spend that time prepping and anticipating and participating in tricks and treats.  I choose Halloween.  I choose holding Mary Tyler Son’s hand.  I choose living over cancer.

I think Donna understands.  At least, I hope she does.