It’s the End of the World As We Know It (and I Feel Fine)

Sometimes a bottle cap can change your life.  This is the bottle cap that changed mine.

Quote Cap

When Donna was in the thick of her cancer treatment, we were blessed with tremendous support.  Our family cooked for us, cleaned for us, laundered for us, shuttled us around, comforted us, and supported us so we could support Donna.  Truly, we were lucky.

During that time, despite all the help we had, I remember just pining for simple things.  I wanted to shop for ourselves.  I wanted to fold our socks the way I wanted to fold our socks and felt embarrassed when my undies had been folded by someone else.  I wanted to do dishes.  It’s hard to imagine the simple things you take for granted when your world is turned upside down and inside out.  And that pining for the ability to just simply run our household by myself always made me feel like an ungrateful jerk.  I have no doubt that the beautiful folks who provided us with so much help sometimes felt that from me (I’m sorry, Grandma!  I’m sorry, Papa!  I’m sorry, Auntie!).  I still feel guilty about that and only hope they understand and forgive.

One blessed day, I got the chance to do dishes.  In the midst of chaos and uncontrollable circumstances, having a task with a beginning, middle, and end feels like pure bliss.  It makes sense, you know?  The kitchen starts out with crumbs and dirty dishes and coffee rings under mugs left on the counter.  Twenty minutes later, the sink is empty, the crumbs are gone,the counters are clear, and the dish rack is full.  This is a simple pleasure of life, if you can get past the oppression of its constancy.

So the cap.  On this eve of the Mayan apocalypse, this bottle cap that now hangs on my bulletin board is worth some consideration.

As I was clearing dishes into the soapy sink that day years ago, I found an iced tea bottle.  I rinsed it out and saw its companion cap.  As I was rinsing the cap, I noticed the words on it.  Huh.  Then, Whoa.  Followed by, Wow.

The quote is falsely attributed to Martin Luther King, Jr.  These words were actually spoken by Martin Luther of the Protestant Reformation Luthers.  Apparently, Snapple doesn’t sweat the details.  Pfffft.  16th century theologian and 20th century civil rights activist — they all look the same, you know?

Anyway.

When I read these words, I knew that my world would shortly be going to pieces.  I knew that my first born would die.  I knew this intellectually and emotionally.  It is crippling to have this knowledge about your child.  Just typing that sentence makes me burst into tears, leading Mary Tyler Son to offer me the green car he is playing with at my feet, as he knows well what his mother’s tears are usually about.

And yet, after last week’s shootings in Newtown, I remain so very grateful that I knew of my daughter’s death.  That knowledge, crippling and brutal as it is, is like all knowledge.  It is power.  Because of that knowledge, I had the power to say goodbye.  Because of that knowledge, I had the power to try and prepare Donna to die.  Because of that knowledge, I had the power to try and prepare myself for Donna to die.  Sigh.  None of these are anything that I would wish for, but in the face of uncontrollable circumstances and the harsh reality of life (life = death), having the ability to know your child’s fate is a blessing.  My heart will always hurt when I think of those twenty families who sent their child off to school where the worst thing imaginable awaited them and no one knew.  No one said goodbye.

My family had what those twenty families did not.  We had the opportunity to plant those apple trees knowing what we were doing.  Martin Luther’s words are, in essence, all about choosing hope.  Despite knowing the end of the world is nigh, plant those apple trees, he advises.  Hope for something better, a different outcome, eternal salvation, whatever it is that brings you comfort and solace.  Our apple trees were more concrete:  buying a larger home that could accommodate more kids and guests, pre-school for Donna in the last weeks of her life, welcoming Mary Tyler Son into our lives in the midst of such a sad, sad time, dance class for Donna in the face of four relapses, and the forming of Donna’s Good Things, the charity created to honor Donna’s memory.

I look back, three and a half years after I first wrote about choosing hope and this bottle cap.  I am so grateful for the proverbial apple trees we planted.  In August 2009, just two months before Donna died, I wrote of these choices, “These are our apple trees. And my latest hope is that these trees will sustain us when our world does go to pieces. That these trees will feed us and shade us and shelter us from the inevitable storms that will be.”

Yes, there have been storms.  Some days stormier than others.  Some days the rain falls steadily in our hearts and out our eyes even though the sun is shining brightly outside.  But those apple trees have done exactly what I hoped they would do.

We are still in the home we bought when Donna was diagnosed, and it is large enough for our next child to have their own room.  The pre-school that Donna loved so much welcomed Mary Tyler Son this fall.  The warmth of the school community, the connection to Donna on a regular basis, is so very sweet to have.  The dance studio where Mary Tyler Son takes his weekly class has been renamed, “The Donna Quirke Hornik Dance Studio,” and there is a photo of Donna above the door that he walks under as he enters.  700+ students from Rogers Elementary School in Chicago now receive weekly dance instruction thanks to those apple trees and our generous donors.

Choosing hope has and continues to feed us, shade us, and shelter us from the storm of grief over losing a child.  Those apple trees, the decision to choose hope, most meaningfully benefits our beloved son and the next child we will be blessed with through adoption.  Choosing hope and planting those apple trees both allow us to keep our roots, the memories of our dear Donna, and grow and reach and still produce the sweet fruit of parenting other children.

Thank you, Martin Luther!  Thank you, Snapple!  This sad, grieving, joyful, agnostic mom thanks you.

I also thank Moms Who Drink and Swear, who asked that I write about a quote that inspires me, then specifically asked me to write about this quote.  I love her dearly.  If you like this, please consider pressing that little “like” button above, so all your peeps can like it, too.  We all could plant some more apple trees, right?

 

‘Parenthood’ and Cancer

I love parenthood.  And I love ‘Parenthood,’ the NBC slice of privileged Northern California life drama.  I never miss an episode.  Really.  And when I see a new episode pop up on Hulu, well, I know just what Imma curl up with as soon as the boy is asleep.  Every episode makes me cry.  Every damn episode.  I love it.  Capital “L” Love it.

I pine for the closeness of the four siblings.  Four kids each crazy different in qualities and temperment attached to four spouses/significant others also equally different in qualities and temperment, but impossibly, making all those relationships work.  And the parents?  Love those two, too.  I can’t quite get a read on the Mom Camille, but the Dad?  Zeek?  Bam.  Great character, great acting.

I have no idea how they make it work without familial bloodshed.  Really.

This season, its fourth, is like crack for me because so many of the story lines mirror my own life:  Adoption?  Check.  Stepping away from employment to focus on family?  Check.  Cancer?  Check and check.  Sadly.

It is commonly understood amongst the cancer circles I find myself in that it is hard to portray cancer and living in Cancerville accurately.  My Sister’s Keeper?  I hated it.  Really, really hated it.  50/50?  Better and so full of potential, but missed so many marks.  I am both hoping and dreading the inevitable sale of the film rights to “The Fault in Our Stars,” a newish and wildly popular YA book that is next on my list of books to read, but is getting tremendous press.

This season, Kristina Braverman (great and intentional surname, no doubt) is diagnosed with breast cancer that has metasticized in her lymph nodes.  Not great.  Especially not great for Kristina, who is a fairly high-strung, though incredibly loving, mom.  Ugh.  I feel for her.  I do.  And, yes, as a sometimes high-strung, though incredibly loving, mom myself, yeah, I relate.

Hats off to the writers, man.  They are nailing it.  Capital “N” Nailing it.  The nuances of Cancerville, though the Braverman family has just moved in, are spot on.  I see the fear in their eyes.  The complete lack of control you have within the medical system, as you become just a cog in the cancer wheel industry.  The almost unbearable beauty of life that you become aware of that at times feels oppressive as you have to recognize and appreciate all of it.

The sacred moment when you watch the poison that you hope/pray will heal you snakes its way through yards of plastic tubing.  The quiet in the room at that moment, despite whatever noise may be present.  The helplessness of the person you love most staring at you, close in inches, but miles apart in so many other ways.  The awkwardness of needing help and feeling immense gratitude when that help presents itself, but it is paired with equally immense annoyance that you can’t find the damn jar of peanut butter.

I watch every week and I am dumbfounded at the writers’ precision, the actors’ gifts in bringing Cancerville to life.  Seeing that reality so deftly portrayed on screen is bringing truth to life.  And there is comfort seeing your truth on a screen, whatever that screen may be.

Parenthood Cast

Cast of NBC drama ‘Parenthood’ — aren’t they all just impossibly beautiful?

The Junk in My Trunk

When I was in graduate school I trained in the PTSD Clinic of a local VA Hospital.  All of my clients were Vietnam veterans.  I was a 26 year old woman.  What the hell did I know about Vietnam?  Not a whole lot, it turns out.  I spent the summer before I started educating myself by reading everything I could get my hands on about the war, the era, the soldiers, the Vietnamese.  It was an interesting summer.  Powerful and humbling.

Novels were the things that helped me the most.  A good novel reveals truth.  Tim O’Brien wrote a book (a hybrid of memoir, novel, and story collection) called The Things They Carried about a platoon of soldiers in Vietnam during the war.  The title refers to just as it says — the things the soldiers chose to carry with them in their rucksack, the premise being that those things were in some way indicative of who carried them.  The things captured some essence of their carrier.

That idea, that we keep the things that matter to us close, has resonated with me ever since.  It hit me like a ton of bricks a few weeks ago when I opened the trunk to my car.  What I saw was a hodge podge collection of stuff, some of it junk, that so completely reflected my life and its particular chaos.  So here it is, an ode to Tim O’Brien, and a reflection on the junk in my trunk.

Junk in my Trunk

A log.  

This cut log is from the cemetery where my daughter rests.  She is buried in a “nature sanctuary,” which means that she is surrounded by trees.  This is why we chose where we chose for her to rest, despite it being a 90 minute drive.  It is peaceful and lovely.  The sun plays through the trees and dapples Donna’s gravestone.  Nothing I plant grows there — I can’t for the life of me keep the deer away.  And that’s okay.  They keep Donna company.  Right now, like so much of the rest of America, they are trying to do more with less.  Seems like the sleepy nature sanctuary we chose in 2009 is all the rage now.  Green burials, they call it.  They are cutting down a lot of trees to make room for more graves.  More nature with less trees.  Yeah, it doesn’t make sense to me either.  I took this log in July, wanting a piece of what was close to Donna to be with us now.

St. Baldrick’s Banner.

Last March, Donna’s Good Things held it’s first annual St. Baldrick’s shaving event.  We raised $77K for pediatric cancer research through the kind help of a lot of friends and strangers.  Extraordinary.  We’re doing it again next March 30.  Do you have a head?  Do you want to shave it for kids with cancer?  You can.  I’ll be there and so will this banner.  Somehow it never made its way inside.  I can’t quite wrap my head around needing to find a place in my home for a St. Baldrick’s banner.  It’s safer in the car.  I can ignore it more easily there and then take it out when I need it again.

Mary Tyler Son’s Artwork.

What do you do with all this artwork?  Where is it supposed to go?  I haven’t quite gotten around to sorting it out.  Pinterest tells me I should photograph and scan it.  Ugh.  That requires a level of organization and forethought that escapes me.  Some of my friends frame it and proudly display it in their home.  I wish I were that Mom.  I’m not.  That, too, requires effort that I can’t quite seem to find.

Blue Blanket.

This is my husband’s blanket.  It is old and ratty.  An adult version of Linus’ blanket, if you ask me.  He won’t allow us to get rid of it.  We keep it in the car because it’s just sensible to have a blanket in the car, but damn if I want that thing around me in an emergency.  Ick.  They say there are no athiests in a fox hole and there’s probably no germophobes in a freezing car either.  At least that’s what I tell myself.

Office Stuff.

I quit my job last month.  Yep.  Closed up my cube and now its contents sit in this box in my trunk.  There are two other boxes from the last office I closed in our storage room.  Mary Tyler Dad complains about them all the time.  I can’t quite bear to add one more to that pile, so here the box sits.  In the trunk.  Sigh.

Twig.

This twig is in the shape of Mary Tyler Son’s first initial.  He found it on a trip to the beach a few weeks ago.  I picked him up from school and it was unseasonably warm.  I made a left instead of our usual straight, just on a whim, and we headed for the Lake.  I am so grateful for spontaneity in my life.  There are so many possibilities in it.  Like unexpected “nature dances” on a warm fall day that entail nothing more than spinning ourselves around in a circle until we fall in a heap on the sand, laughing, hugging, and kissing.  This twig will find its way inside, to be hung on the boy’s wall, so we can both remember a warm afternoon in the sun, spinning in the sand, hugging and kissing and loving.

Glitter.

Lots and lots and lots of glitter.  Mary Tyler Son goes to the school where Donna went.  We see her teachers frequently.  That brings us a lot of joy.  Back in 2009, though only knowing her for a few weeks, they came to visit during her vigil.  They got to say goodbye and give us some much appreciated love and hugs.  The day after their visit, Donna died.  As a memorial, they had the children in Donna’s class decorate a pumpkin.  A big, bedazzled, feathered, painted, glittered pumpkin that only pre-schoolers are capable of making.  For young kids, more is always more.  The pumpkin has become an annual tradition in our home.  We look forward to it and it brings us joy.  This year, because we are at the school, we got to carry the pumpkin home ourselves.  That glitter is gonna stick around for a while.  And that’s okay.  We all could use a little more sparkle in our lives, right?

Separately, these things are just a collection of a lot of nothing.  Together, they tell a story.  My story.  The story of my life today and how I’m a little overwhelmed by it all.  Lord, what a mess it is.  But it’s my mess.  And I cherish it.  And I carry it all close.  Perhaps too close, but since I took this photo, I moved the log to my coffee table, so that’s progress.

What junk is in your trunk and what does it say about your story?