Coming Out of the Closet

It’s time.  My daughter’s closet needs to be cleared.  In October, my daughter, the beautiful Donna, will have been gone from our home for four years.  Four years.  Those years have somehow mysteriously inched and sped by simultaneously.  By next January, Donna will have been dead more than she was alive.  I shake my head, the tears flow, my arms and heart ache.

On some very essential level, I still don’t believe that I had a daughter and that that beautiful girl died of cancer.  How is that even possible?  This is a hard time of year for me.  July brings Donna’s “would be/should be” birthdays.  This year, on July 20, my daughter would have been, should have been eight years old.  But she isn’t.  Instead, she is and will always be four. Just four.

Four years old, which is how old Mary Tyler Son is.  Four years.  A lifetime for Donna, and yet my boy is just coming out of the gate, so to speak, in the midst of his own fourth year in his young life.  He is growing, changing, different every day.  He is full of energy and mischief and play..  At four years old, Mary Tyler Son is full of life, while his sister, at four years, was full of cancer.  There is such a deep, profound sadness at this juxtoposition.

Donna was stylish.  She loved shoes and had whole wardrobes of hats and arm protectors (really baby leg warmers that protected her picc line).
Donna was stylish. She loved shoes and had whole wardrobes of hats and arm protectors (really baby leg warmers that covered her picc line).

Last weekend, my husband grumbled at the suggestion of trekking to the suburbs to look for a bed, a “big boy” bed for Mary Tyler Son.  I chided him, gently, and told him how lucky we were to be shopping for a bed for our son. I didn’t mean to be so blunt about it, but it was truth, our truth, and it needed to be said.  It is so very easy to get stuck in the muck of life.  Grrrr, a drive to the land of strip malls and chain restaurants, grrrr.  It’s easy to think that.  I did, too, to tell the truth.  I am tired.  I am recovering from pneumonia.  Two hours in a car to buy a bed that we may or may not find?  Grrrrr.

But we did it.  We found a bed.  A great bed, in fact, at a great price.  Hooray! There is much to be done — walls to paint and furniture to rearrange and sheets to buy and a Magic Tree House theme to coordinate.  There is much to do.  Busy work that should be a joy, a celebration.  Our boy is growing up! Hip Hip Horray!  Three cheers for the boy growing up!

Which brings me back to the closet.  Mary Tyler Son and his sister shared a room for the nine months their lives overlapped.  Kind of, but not really, honestly.  For three of those months we lived in Bloomington, Indiana, where we went for proton beam radiation treatment for Donna’s aggressive brain tumor (fuck you, fucking tumor).  For five of those months Mary Tyler Son slept in a car seat, as it was the only sleeping angle where he didn’t aspirate. For seven of those months, Donna slept in our bed, between us, eking out as much time together as we could before cancer took her away.

So the shared bedroom was more like a shared closet.  Donna had two drawers, Mary Tyler Son had one.  Donna had the left side of the closet, Mary Tyler Son had the right side.  Most of the upper shelves were dedicated to medical supplies.  So very many medical supplies.

When your child dies before you, there are many tasks you are faced with, most of them brutal.  One of those tasks is determining what to do with their things.  What to do with Donna’s clothes, her tutus, her coats, her boots? What to do . . . Some things went away right away.

We could not get rid of the medical supplies quickly enough.  Liberation is what it felt like.  Bottles and bottles and more bottles of medicine.  Bags of fluids.  Boxes of saline solution syringes.  Latex gloves.  Nebulizers with purple dinosaur masks.  Padded chucks for the night time vomiting and bed wetting brought on by overnight fluids.  Tubing.  More tubing.  A bright red sharps container, just like in your doctor’s office.  Gone.  Good riddance.

Some clothing and shoes went to a cousin of Donna’s.  I am still touched that my cousin accepted Donna’s clothing and dressed her own little girl in it.  To see Donna’s shoes on another child’s feet always brought me comfort.  But that cousin is long grown out of Donna’s things, as she is now older than Donna ever was.

The last clothing Donna wore I couldn’t part with.  We have whittled away at it over these four years and it has been condensed to a couple of shelves and half the hanging space in the closet.  Every time I open the door I am reminded, “Yes, Donna.  I miss you, girl.  You were here and I mothered you and dressed you and here is the evidence of that.  You were here, girl, and I remember.”  Every time I open the closet it is the same thing.  Donna wafts out at me, reminding me that once upon a time I mothered a daughter.

I don’t mother a daughter anymore and I never will.

There is no longer the need for dresses and hair bows and tutus and pink boots and silver sequined tiaras.  It is time.  Mary Tyler Son needs the space.  As we prepare to open our hearts and home to a baby boy through adoption, we know and feel that, yes, it is time.  The last of Donna’s things need to be packed away to make room for those of us in this family that are still here, still breathing, still growing.

Good Lord, that is cruel to type.  Forgive me, Donna. Forgive me, girl.

Tomorrow:  Coming Out of the Closet, Part II:  Donna’s Things

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My Mama Martyr Moment

Have you ever had one of those moments where you’re acting like a complete and total martyr and are powerless to stop yourself?  You know what I mean — the mother martry — the worst kind.  I shudder at the thought, but I think all us moms have them at times.  I think it’s best to acknowledge them, atone for our mothering sins, then move the hell on.  “Hi, my name is Mary Tyler Mom and sometimes I can be a martyr.”  HI, MARY TYLER MOM!

Today is America’s 237th birthday.  I love the 4th of July and most everything closely associated with it — parades, fireworks, hot dogs, stars and stripes, patriotism, carnival rides, cakes over decorated with blueberries and strawberries, the boom from your neighbor’s illegal fireworks late into the night.  I love it all, every last piece of it.

This year we are celebrating with my in-laws in their smallish New England town.  The morning was spent on the town commons, which even sounds New Englandish.  All the kids are encouraged to decorate their preferred mode of transport: tricycles, scooters, bikes, wagons, etc, and scoot or pedal around the town commons while looking exceptionally adorable in their red, white and blue.  There is so much to love in this simple, local celebration.

A couple of days ago we stopped at a craft store to pick up some supplies — ribbon, garland, flags.  The basics.  $12 in and we had everything we needed to trick out Mary Tyler’s Son’s borrowed scooter, USA style.  This morning we woke and as a family decorated the hell out of that scooter.  What a thing of shining beauty.  Mary Tyler Son was beaming and bouncing on the sofa. He loved his tarted up scooter.  I did, too.  I was proud that with 45 minutes of effort, Mary Tyler Son would surely be admired as he scooted around that commons.  That’s my boy!

BEHOLD!  Throw me a bone and admire my scooter, will ya?
BEHOLD! Throw me a bone and admire my scooter, will ya?

We headed out to the commons, a little late, but no worries.  I carefully put that beautifully decorated patriotic scooter gently in the trunk and off we went.  As we were walking towards the line-up, Mary Tyler Son tugged at my hand, “I’m tired,” he said, with more than a tinge of whine.  Uh oh.  I know full well what “I’m tired” means.  It’s code for, “Hell no, Mom, I am not gonna do that thing you want me to do, that I was so excited to do up until one minute ago, no freaking way.  I am OUT.”  Dammit.  Seriously.  Damn.  It.

Ugh.  And sure enough I took the bait.  Rather than just let it be, scoop up my tired and overwhelmed four year old, I opted to take the bait.  Ugh.  I dropped down to his level and eye to eye said in my authoritative, “I mean business, little man” tone, warned him to get it together.  That we would, indeed, be walking three times around the commons and that he would, indeed, like it.  Ha!  Joke’s on me.  Mary Tyler Son was done.  Finished.  It was too hot and too crowded and too unfamiliar for him.  He knew it, I didn’t.

Rather than be in the moment and simply enjoy the other little kids and families walking around and waving their flags, I stewed.  It is never fun to stew, but it is especially not fun to stew in 92% humidity.  Throw in a few pouts and there you have it — my moment of mama martyrdom.

Wah, I thought to myself.  I decorated that scooter so damn cute, way cuter than that other scooter over there, and now no one is going to even see it. Wah, wah, wah.  And my boy is such a punk, surely he’s doing this just to spite me.  What a brat.  Wah.  And why does no one love a holiday like I do? Why can’t we just do one thing together without a hassle?  Wah, wah, wah.

Poor mama.  I knew what I was doing.  Mary Tyler Dad did, too.  Ugh, and I am not proud of myself.  Just like I wanted Mary Tyler Son to get it together, I knew I had to get it together, too, and quick.  And a few minutes later I did.  I stopped pouting and martyring myself over $12 of ribbon wrapped (albeit adorably) around a borrowed scooter.  I got it together and moved on.  Mary Tyler Dad graciously gave me the space I needed and tended to the boy while I did.  Teamwork, yo.

My point is that we’re all gonna feel like martyrs at times, right?  It happens. But get over yourself, mama, and move the hell on.  Stew away and resent away and pout away, for a moment or two, and then let it go.  Let.  It.  Go. Feel the feelings and then move on.  Life is too short and parades move too fast to dwell on what is wrong rather than what is right.  Because so much is often right.

The sun was shining, the kids were beaming, the old ladies were waving their flags.  Despite not walking around the commons with strangers admiring my Pinterest worthy decorated scooter, life was very, very good this morning. This afternoon, too.  Happy birthday, America!  Be safe and don’t wallow.

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The Family You Choose

I am fresh off a week’s vacation in rural Vermont.  Every summer for however many years, my family has joined three or four other families for a little something we like to call “Rockababy.”  I first wrote about our communal vacations here.  The core group was formed way back in the 1980s among friends at the New England high school they attended.  I am a happy addition through marriage.

My own family didn’t really take summer vacations.  We would have the occasional trip to Janesville, Wisconsin for a couple of days at the Holiday Inn with the pool.  There was the St. Louis trip when I was four where I oddly remember getting to sit in the “toilet seat” while riding to the top of the Gateway Arch.  And there was the grand family vacation, our only one really, where six of us crammed into an RV and toured the western United States. That trip was at turns perfect and a disaster (just like family), but I have very fond memories of it (just like family).

This last week, surrounded by good friends, I spent most of every day in bed, as I was diagnosed with pneumonia mid-trip.  In a lot of ways that sucked, but in a lot of other ways, the perfect time for a mom to get pneumonia is when she’s on vacation with seven other capable parents. What sucked worse was the lack of wifi.  No Internet while stuck in bed for a week.  Yeah, that really sucked.

I spent more than a few hours streaming episodes of The Sopranos on my iPhone, feeling nostalgic after news of James Gandolfini’s death.  It is fairly unsatisfying to watch that quality of television on a screen the size of your palm, but desperate times call for desperate measures, right?  And when you’re sick, you’re sick.  So, there we were, me and Tony, hanging out, getting reacquainted after all those years.

Sopranos Family

That’s when it struck me.

There’s the family we’re born into, and then, if we’re lucky, there’s the family we choose.  Tony Soprano had his chosen family, and I was surrounded by my chosen family.  Ha!  The juxtoposition between these two chosen families makes me giggle, as this New England crew could not be more different than Tony’s Jersey crew.

The toughest person in my chosen family would be a toss up, but definitely a woman.  It might be S., the high school teacher who spends her summers working on a Fulbright extension program, touring Pakistani students through New England.  Or M., the biochemist working to find a cure for cancer. Possibly A., whom I always lovingly refer to as the “Martha Stewart of Iowa,” who had the guts to bring her two young daughters into the rain forests of Suriname (it’s okay, I had to check it on a map, too) for this year’s spring break.

Yeah, Paulie Walnuts ain’t got nothin’ on these broads.

One of the beautiful gifts my husband has given me are the long maintained childhood friendships he nurtures.  I remember in our wedding vows, I wrote that I would work to cultivate our “mutual community,” not quite knowing what that might look like, but wanting it still the same.  Relationships take work. Family relationships, too.  Chosen families are no different.

My chosen family.
My chosen family.  Photo courtesy of Anne L. Geissinger

Each year we make the effort to reconnect.  Even if there is minimal contact throughout the months, we know that once a year we will come together, watch our children play in the sunlight and rain, eat 21 cooked meals together, fall deeply into whatever sofas we are near after the kids go to sleep, gorge on chocolate and sweets, and catch up, reconnect.  We have seen each other through illness, death, grief, loss of jobs, depressions, and on and on.  We like one another.

I am grateful for these folks who have come to be my friends even though they started as my husband’s friends.  I am lucky these folks have picked such fantastic life mates.  I am happy to think of them as extended family, my chosen family.

Maybe a bit like Tony thought of his chosen family.  With less whacking.  And fewer stripper poles.

If you are part of this family, thanks for taking such good care of me this past week.  This is my ode to you.  And if you want to subscribe to these posts of mine, well here’s how:

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