25 Things You Don’t Know About Me (That Don’t Really Matter)

1.  We did not serve cake at our wedding.  We had wedding pie.

2.  I have the palate of a six year old.

3.  I didn’t learn how to ride a bike until I was 12.

4.  I never drank until my mid-20s.

5.  I only drink full sugar soda, preferably Coke, and usually twice a day.

6.  Felicity was my ideal woman for the longest time.

7.  When they make a Lifetime movie about the trage-comedy that is my life, I want it to star Anne Hathaway.

8.  My first job after graduating college was selling pantyhose.  I did this for far too long, clocking in at a year.

9.  My first best friend was a boy named Allan.  I was crushed when he moved away.

10.  I used to want to be a flight attendant.

11.  I never leave the house without Blistex.

12.  The only beer I ever drank in my life was in Munich, Germany.  In 1994.

13.  My husband and I have always kept our finances separate.

14.  I used to work with my Dad.

15.  I wear too much black.

16.  I am a cheap date.  Very happy with cheeseburger and a movie.

17.  I have not chewed on the left side of my mouth since 2004 (I also have a dental phobia).

18.  I once did a tandem hang glide off the Swiss Alps.

19.  My calves are the largest known to man.  Finding boots that fit is practically impossible.  I blame Irish peasants.

20.  I grew up on canned vegetables.  There is nothing worse than canned vegetables.

21.  Spent my honeymoon in Croatia.

22.  I adored Catholic school.

23.  I have a problem with storing important things in closets.

24.  Phil Donahue was one of my first crushes.

25.  I don’t drink coffee.

Delivering Christmas

A few weeks ago a request for donations crossed my path on Facebook.  I use social media for fundraising, so it caught my eye.  Cal’s All Star Angel Foundation, a charity focused on making life for kids with cancer better, was seeking donations for its 12 Days of Christmas program.

For the past three years, the charity has “delivered” Christmas to seriously and terminally ill children treated at Lurie Children’s Hospital of Chicago.  This involves gifts for the diagnosed child, and for each of their siblings as well.  Then there is homemade Christmas cookies, a gingerbread house, and finally a gift card for a local grocery story so the family can have a special dinner catered, or shop for themselves, whichever they prefer.

What a great idea, I thought.

Our girl was diagnosed in 2007 and that year we spent the entire holiday season in the hospital, Donna recovering from her stem cell transplant.  We walked in the door December 4 and Donna was not discharged until January 4.  Christmas was not something we worried about that year.

In 2008, we brought Donna to the ER on Christmas Eve morning with listlessness and a fever.  She checked out fine when we got there, no infection, so we went home.  On Christmas Day, she was listless, and vomiting.  No family celebration.  We called the docs and because there was no fever, we got permission to stay home for the holiday.  By 6 AM on the 26th we were back in the ER, Donna ashen and unresponsive and now had a fever.  She had dangerously low levels of carbon dioxide in her blood and was diagnosed with RSV, a sometimes fatal cold strain for infants and immuno-suppressed children.  Poor Mary Tyler Son’s due date was days away.  Yeah, that was not much of a Christmas either.  We didn’t know it at the time, but it would be Donna’s last one.

When I saw’s the 12 Days of Christmas program, I felt in my bones how worthwhile an initiative it was.  Kids with cancer get lots of toys and extras because of their illness, it’s true, but to take the responsibility of Christmas from a family who is burdened with bills, stress, fear, and terror.  Yeah, that is a good thing.

I put the word out on Facebook and within a 24 hour period, Donna’s Good Things had collected $1,399.00 to support Cal’s 12 Days.  It really does feel good to do good.  I dropped off the check with Cal’s Dad and Step-Mom who run the charity.  In return, they asked if my family would like to be one of the volunteer families to “deliver” Christmas.

Deep breath in, deep breath out.

My first reaction was a bit of panic.  To go into a home where there is a child who is seriously or terminally ill feels a bit like walking into the lion’s den to us.  It is hard.  Hard.  We said yes.

The first child we were paired with was a little 7 year old girl with a brain tumor.  There was a three year old brother, too.  Just like my family.  Deep breath in, deep breath out.  Unfortunately, that little girl’s health took a turn and she died.  Just like that, folks.  Cancer does not care if it is Christmas time.  I hold that family close in my thoughts.

In the end, we were paired with a different family.  One little girl who loved all things purple and pink.  Mary Tyler Son came down with a cough, so he was out.  Mary Tyler Dad had to work, so he was out.  Just me, walking into that lion’s den alone.

The thing is, the lion’s den is a familiar place to me.  I’ve been there before and once you’ve been there, you never forget it.  I wrapped this girl’s gifts special, finding pink and purple glitter wrapping paper and a pink snowflake for flair.  Go big, you know?  When you’re 9, more is always more.  I wrapped those gifts with love.  She felt like my own girl and I wanted everything to be perfect for her.

Christmas Gifts

When I pulled up, I saw her peeking through the curtain.  She bounded out of the house to greet me.  She had a beautiful smile.  Really gorgeous.  And shiny eyes.  She invited me into her home where I met her Mom and Dad and Grandmother.  I sat at their table and visited as their beautiful girl opened her gifts.  Love, love, love.  Nothing but love.

It turns out, that lion’s den wasn’t so bad after all.

Thank you to all the generous donors who made our donation possible.  Thank you to Cal’s All Star Angel Foundation for all the incredible programming and wish granting you do.  Thank you to the family that opened their door to a stranger bearing gifts.  I choose hope for that beautiful girl and wish her the Merriest of Christmases.  Many, many Merry Christmases.

It’s the End of the World As We Know It (and I Feel Fine)

Sometimes a bottle cap can change your life.  This is the bottle cap that changed mine.

Quote Cap

When Donna was in the thick of her cancer treatment, we were blessed with tremendous support.  Our family cooked for us, cleaned for us, laundered for us, shuttled us around, comforted us, and supported us so we could support Donna.  Truly, we were lucky.

During that time, despite all the help we had, I remember just pining for simple things.  I wanted to shop for ourselves.  I wanted to fold our socks the way I wanted to fold our socks and felt embarrassed when my undies had been folded by someone else.  I wanted to do dishes.  It’s hard to imagine the simple things you take for granted when your world is turned upside down and inside out.  And that pining for the ability to just simply run our household by myself always made me feel like an ungrateful jerk.  I have no doubt that the beautiful folks who provided us with so much help sometimes felt that from me (I’m sorry, Grandma!  I’m sorry, Papa!  I’m sorry, Auntie!).  I still feel guilty about that and only hope they understand and forgive.

One blessed day, I got the chance to do dishes.  In the midst of chaos and uncontrollable circumstances, having a task with a beginning, middle, and end feels like pure bliss.  It makes sense, you know?  The kitchen starts out with crumbs and dirty dishes and coffee rings under mugs left on the counter.  Twenty minutes later, the sink is empty, the crumbs are gone,the counters are clear, and the dish rack is full.  This is a simple pleasure of life, if you can get past the oppression of its constancy.

So the cap.  On this eve of the Mayan apocalypse, this bottle cap that now hangs on my bulletin board is worth some consideration.

As I was clearing dishes into the soapy sink that day years ago, I found an iced tea bottle.  I rinsed it out and saw its companion cap.  As I was rinsing the cap, I noticed the words on it.  Huh.  Then, Whoa.  Followed by, Wow.

The quote is falsely attributed to Martin Luther King, Jr.  These words were actually spoken by Martin Luther of the Protestant Reformation Luthers.  Apparently, Snapple doesn’t sweat the details.  Pfffft.  16th century theologian and 20th century civil rights activist — they all look the same, you know?

Anyway.

When I read these words, I knew that my world would shortly be going to pieces.  I knew that my first born would die.  I knew this intellectually and emotionally.  It is crippling to have this knowledge about your child.  Just typing that sentence makes me burst into tears, leading Mary Tyler Son to offer me the green car he is playing with at my feet, as he knows well what his mother’s tears are usually about.

And yet, after last week’s shootings in Newtown, I remain so very grateful that I knew of my daughter’s death.  That knowledge, crippling and brutal as it is, is like all knowledge.  It is power.  Because of that knowledge, I had the power to say goodbye.  Because of that knowledge, I had the power to try and prepare Donna to die.  Because of that knowledge, I had the power to try and prepare myself for Donna to die.  Sigh.  None of these are anything that I would wish for, but in the face of uncontrollable circumstances and the harsh reality of life (life = death), having the ability to know your child’s fate is a blessing.  My heart will always hurt when I think of those twenty families who sent their child off to school where the worst thing imaginable awaited them and no one knew.  No one said goodbye.

My family had what those twenty families did not.  We had the opportunity to plant those apple trees knowing what we were doing.  Martin Luther’s words are, in essence, all about choosing hope.  Despite knowing the end of the world is nigh, plant those apple trees, he advises.  Hope for something better, a different outcome, eternal salvation, whatever it is that brings you comfort and solace.  Our apple trees were more concrete:  buying a larger home that could accommodate more kids and guests, pre-school for Donna in the last weeks of her life, welcoming Mary Tyler Son into our lives in the midst of such a sad, sad time, dance class for Donna in the face of four relapses, and the forming of Donna’s Good Things, the charity created to honor Donna’s memory.

I look back, three and a half years after I first wrote about choosing hope and this bottle cap.  I am so grateful for the proverbial apple trees we planted.  In August 2009, just two months before Donna died, I wrote of these choices, “These are our apple trees. And my latest hope is that these trees will sustain us when our world does go to pieces. That these trees will feed us and shade us and shelter us from the inevitable storms that will be.”

Yes, there have been storms.  Some days stormier than others.  Some days the rain falls steadily in our hearts and out our eyes even though the sun is shining brightly outside.  But those apple trees have done exactly what I hoped they would do.

We are still in the home we bought when Donna was diagnosed, and it is large enough for our next child to have their own room.  The pre-school that Donna loved so much welcomed Mary Tyler Son this fall.  The warmth of the school community, the connection to Donna on a regular basis, is so very sweet to have.  The dance studio where Mary Tyler Son takes his weekly class has been renamed, “The Donna Quirke Hornik Dance Studio,” and there is a photo of Donna above the door that he walks under as he enters.  700+ students from Rogers Elementary School in Chicago now receive weekly dance instruction thanks to those apple trees and our generous donors.

Choosing hope has and continues to feed us, shade us, and shelter us from the storm of grief over losing a child.  Those apple trees, the decision to choose hope, most meaningfully benefits our beloved son and the next child we will be blessed with through adoption.  Choosing hope and planting those apple trees both allow us to keep our roots, the memories of our dear Donna, and grow and reach and still produce the sweet fruit of parenting other children.

Thank you, Martin Luther!  Thank you, Snapple!  This sad, grieving, joyful, agnostic mom thanks you.

I also thank Moms Who Drink and Swear, who asked that I write about a quote that inspires me, then specifically asked me to write about this quote.  I love her dearly.  If you like this, please consider pressing that little “like” button above, so all your peeps can like it, too.  We all could plant some more apple trees, right?