Adoption and Surrogacy and IVF, Oh My!

Seven months into Donna’s cancer treatment, we learned that the docs were recommending a stem cell transplant for her.  The toxicity of the chemo required to kill off her immune system was so potent that the transplant team informed us that Donna, just three years old at the time, would never be able to bear biological children.

We were still firmly in the camp that Donna could survive her brain tumor, and so I grieved a little grief over my two year old’s future fertility.  And then, with our daughter,  headed into one of the most arduous phases of cancer treatment a human can ever experience.  When you are parenting a child with cancer, you learn quickly to do what you need to do and keep moving forward.  It is shocking to learn what choices you are capable of making when your options are so grim.

It was during that period when I first initiated a discussion about adoption with my husband.  “When treatment is over, we should talk about adoption.  If Donna won’t be able to carry children, I want her to know that families are made in all different kinds of ways.”  Our adoption plans eventually became moot, as Donna’s cancer proved so tenacious.

Fast forward a few years, after Donna’s death and the three miscarriages that followed within 18 months.  Adoption was back on the table.

At 42, I wasn’t interested in seeking treatment for infertility.  Despite the miscarriages (4 total, as I had had one earlier), I never thought of myself as infertile, having birthed two full term babies. And my OB/GYN never seemed too curious about what was causing my miscarriages.  Old eggs, we presumed.  Honestly, with my knowledge of what was involved with IVF, I wasn’t interested.  Close friends had been through the process, both successfully and unsuccessfully.  I didn’t think I could take the heartbreak or the medical aspects of it.  A medical trauma like cancer will do that to you.

So in June 2011, just six weeks after my last miscarriage, we initiated the adoption process.  Two years and one adoption agency change later, we would finally connect with the woman who would choose us to raise the son she did not feel capable of raising herself.  We hold this woman very dear to us, as we view adoption as a pact with her, even more sacred than marriage.  She made a brave and selfless choice for her child, one that we honor daily by showering our son with love and care.

I don’t write too much about adoption.  If you poke around the Internet around adoption issues, you will quickly be introduced to the anti-adoption movement.  I don’t know how large or organized or effective the actual movement is, but I do know, from deeply personal experience, that they can be a bullying, angry, and hateful contingent that clearly has “adoption stories” hard wired into their Google alerts.

While I can understand the pain that must precipitate the anti-adoption venom, I cannot condone the tactics or absolutism they employ where adoption is concerned.  It seems almost inconceivable to anti-adoption advocates that healthy, mutually agreed upon adoptions exist.  I have learned I don’t have the stomach for the vitriol that surrounds it.  It is emotionally painful to be judged because of how my family was created and I fully reject the routine accusations of having bought or stolen my baby.

MTM Meme

Historically, that same kind of venom and prejudiced thinking applied to babies conceived through in vitro fertilization (IVF) and other reproductive advances.  The science was scary and, well, sciencey.  People questioned if it was God’s will for babies to be made in a test tube. Even now, it is easy to find websites dedicated to condemning the practice and using fear tactics which suggest that babies born through IVF are much more susceptible to birth defects, including an increased risk for cancer.  More reputable sites, i.e., those lacking a religious agenda, state that those concerns are statistically insignificant.

There is also a moral argument made that people who utilize IVF for their family plan simply want “designer babies,” or the ability to choose their child’s gender and even the number of babies per pregnancy.  Twins are so chic this season, don’t you know!  Conversely, the accusations fly that when twin, triplet, quadruplet, or even larger number embryos are the result of a successful IVF, couples are aborting an extra child or children willy nilly.

Surrogacy, too, does not escape the judgment police.  Last week I was engaged in a friend’s Facebook thread about the morality of surrogacy.  An article was posted about a young woman who learned at age 17 that she was born through a surrogate and now works hard to endorse legislative restrictions against the practice of surrogacy.  I left a comment that the young woman could use a therapist (not sarcasm, but a clinical judgment) and that if the worst thing that should befall her is having been born to a surrogate, well, she should count herself lucky.

I had no idea the thread would quickly turn into a condemnation of the practice of surrogacy as being nothing more than “transactional” in nature, no different than a business deal, and lacking the love of conception.  I’ll be honest, this touched a nerve, as I, too, have been accused of exploiting a woman for my own personal gain because of financial privilege.  When I made that argument, that people considered my adoption a transaction, nothing more than a baby bought and paid for, I was quickly reassured that NO!, adoption is a beautiful thing and how could anyone ever think otherwise?  

My argument, that many people did think adoption was a transaction, and were against the practice because of that, was completely lost in the discussion.  In this particular thread, surrogacy was “morally bankrupt,” and adoption was a loving gift, as if the people who had judged my adoption were wrong, but judging surrogacy was grounded in some higher truth.

It turns out, with a wee little bit of a Google search, there is a fairly strong religious (Catholic) and political (conservative) agenda against surrogacy these days.  A growing anti-surrogacy movement, that I personally feel is another means to prevent gay men from parenting, but that’s just me.

I am reminded of my immediate thought after grieving my daughter’s fertility, ” . . . families are made in all different kinds of ways.”  It was so important to me, even in the midst of nursing my girl through her cancer treatment, that she knew and understood that.

It is just as important that those blessedly untouched by infertility or those not in same sex relationships understand the concept as well.  Not all of us are able to procreate easily and without intervention.  Less judging, more loving.  Families are made in all different kinds of ways, and if those ways are ethical and loving and sincere of intentions, then stop the judging.

If it’s simple enough for a two year old to understand, surely us adults can get there, too, right?

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House of Cards

So much of parenthood is about the “teachable moment.”  My guess is you know what I mean, even if you haven’t heard the phrase before. eachable moments are those spontaneous moments in our day that demonstrate the opportunity to share life’s lessons with our children in accessible ways they will easily understand.  I think I first learned about the concept in grad school, long before kiddos, but it’s served me well in my parenting.

I had one the other day with Mary Tyler Son that was pretty profound, actually.  We were reading from Museum ABC and talking about the art on each page.  The letter “G” was for games and shared this image:

"Boy with a House of Cards" painted by Francois Hubert Drouais, from a collection in the Metropolitan Museum of Art
“Boy with a House of Cards” painted by Francois Hubert Drouais, from a collection in the Metropolitan Museum of Art

Mary Tyler Son was fascinated by what the boy was doing and full of questions.  We play a couple of easy card games, but never tried to build with them.  I promised I would teach him the next day.

So we did.

Oy.  The boy’s eyes expanded almost out of his head with appreciation for the idea of building a structure with cards, but it took all of 30 seconds for him to thrown down his own cards in disgust and frustration when his house didn’t immediately morph into a three story abode.  These were not cooperating like Legos and he was mad.

Ha!  Silly me had a whole teachable moment planned about how family members have to lean on one another in order to stand up and that we are all dependent on others we love for their support, yada yada yada. You get the drill.  Instead, I found myself working hard to prevent a total meltdown because the cards weren’t standing like the painting!  BAH! WHY IS THIS NOT WORKING, MAMA!  

So, yeah, the teachable moment became about something else entirely.

We talked about managing our frustration and how things might look easy, but they aren’t easy at all and that when something is hard the solution is not to throw your hands up in disgust and get angry and yell at your mother like she sold you a bill of rotten goods.  Nope, none of those things.

I had myself my own teachable moment over the cards and tears.  I’m not a sports gal, but get the concept and think that so much of parenting is about reading a situation and calling audibles as needed.  In that moment, my boy could care less about leaning on one another for support and the concept of interdependence.  He needed to process his frustration and calm the hell down.

When you’re a bright kid and things come easily to you, well, it’s natural to get complacent that life is that way.  It’s not.  Life can be a real jerk sometimes.  Even a five year old is not too young to understand that.  Not all things are easy.  Some things take practice.  Some things take work. Some things will never be mastered, no matter how much you might try. That kind of sucks.

Our house of cards success wasn’t triple story construction like the overachieving kid in the painting above.  Nope.  Our house of cards success was the little one, after much patience, standing two cards up and having them stay there about three seconds before they toppled over and he, in response, not toppling over as well.

It wasn’t the teachable moment I had expected, but it was a pretty good one.

House of Cards 2

T-Shirts by Donna to Help Kids With Cancer

DRUM ROLL, PLEASE!  I am thrilled to introduce the newest campaign by my friends at Paper Clouds Apparel — art work featured by Donna.  50% of the proceeds for all shirts and accessories sold between now and June 29, 2014 will be donated to the Donna’s Good Things Campaign with the St. Baldrick’s Foundation, which, to date, has raised $241,438 for childhood cancer research.

That’s a legacy this mama is very proud of.

Robert of Paper Cloud Apparel approached me a few months ago.  I was thrilled with the idea of folks across the country wearing art made by Donna.  I was thrilled to find another way to support the important work of St. Baldrick’s.  I was thrilled that Paper Clouds both employs people with special needs and that the rest of the proceeds from the Donna campaign sales will benefit the continued support of folks with special needs.  It was a win-win proposition.

When Donna spent time in the hospital, which was a lot of time, especially in 2007 and in 2008 after her third relapse, one of her favorite things was to have Willow, the art therapist, come by for a visit.  Willow brought along paints and papers that gave Donna blessed distraction and the opportunity to create.  The nurses noticed Donna’s love of art and gifted her with an incredible easel during the Christmas in 2007 she spent hospitalized.

There were many a morning and afternoon spent in front of that easel.

One of the ways that Donna’s brain tumor seemed to impact her was spatially.  She tended to put color on top of color and restrict herself to a corner of a huge sheet of paper.  We worked with her to train her eyes to expand and to cover more of the area of the paper.  Ha!  That was when she morphed into stripes.  She loved making splashes of rainbows.  Eventually, after hearing us time and time again, “Don’t forget the top of the paper!”, she made a few huge rainbow type flags like you see here that she was so very proud of herself.

St.Baldricks-06

This truck was painted during a trip to the day hospital for chemo in October 2008.  Donna had relapsed again after her July 2008 relapse.  We didn’t know it at the time, but this was the beginning of the end.  The chemo regimen was outpatient and much easier for Donna to tolerate.  It would be an eight hour day and BAM we would be home again.  Trust me that after Donna’s previous protocol of five inpatient days of chemo, it felt like a walk through the tulips.  I remember this truck so very well.  Willow brought us the tools and Donna, out of the blue, painted a truck that day.  It amazed me, as big trucks were always something she feared on Chicago streets.  This one still hangs in our home gallery.

St.Baldricks-08

Happy Frog was painted at the Eric Carle Museum of Picture Book Art in Amherst, Massachusetts during a visit with the grandparents in 2008.  Donna had recovered from her stem cell transplant and it was our first opportunity to travel in eighteen months.  I worried about plane germs with such an immature immune system, but Donna was a champ and we had a beautiful trip.  The museum has this amazing art room where kids are encouraged to create on their own.  We spent a few hours with Donna’s grandmother there in our visit and Donna used sponges and paint to make this frog.  I think it was me or her grandmother who added the smile and eyes, at Donna’s request.

 

St.Baldricks-10

The last work by Donna is her family portrait made during her five weeks of pre-school.  Sometimes I forget how little Donna actually was when she died.  Just four years and three months old.  So much of her art reflects that, when in my head, I have morphed Donna into this ageless, timeless font of wonder and wisdom.  I see her family portrait, and like a punch to the gut, I remember that, yes, while she was full of wonder and wisdom, Donna was still a four year old in every way.  It hurts, honestly, to think of her young vulnerability.  Seeing this family portrait made for her class brings joy, though.  This is how Donna saw us, and that, to me, is precious.

That's Me and Mary Tyler Dad, bigger than life, and Donna and her first little brother are the tiny folks to our left.
That’s Me and Mary Tyler Dad, bigger than life, and Donna and her first little brother are the tiny folks to our left.

As the mother of a daughter who died far too young, there are too few opportunities I get to parent Donna anymore.  This Paper Clouds campaign gives me that opportunity in a BIG WAY.  By spreading the word of this campaign, by working to encourage folks to wear Donna’s art, I get to be both that proud Mama of my girl, but I also get to help advocate for too many other children with cancer who desperately need a louder voice to get them the research their lives depend on, the research that St. Baldrick’s can provide.

Please consider using Paper Cloud Apparel’s new Shirt Builder tool to create designs for you and your family featuring Donna’s art.  There are sizes for men, women, children and babies.  There’s hats and totes, too!  Let’s litter the world with Donna’s art and her hope and her wonder and her joy!  Wear these shirts and tell Donna’s story loud and proud.  “Once there was a little girl named Donna and she was amazing . . .”

Click here to build your own Donna original design.  

Here is Donna painting a mural at her school that now proudly hangs in our home.  Art transforms in so many ways.
Here is Donna painting a mural at her school that now proudly hangs in our home. Art transforms in so many ways.

As Donna’s Mama, I thank you greatly.